Mar 18, 2014 - 12:32 am
It has been a few months since I have been on the site. I did read the latest posts and am happy to see many still active and, unfortunatley, some new posts with diagnoses. I am now 3 years NED and happy to report! I feel good but also still get anxious when I have any symptoms as all of you do. I have a question about follow up care. I am still being followed now every 6 months by the surgeon (until 5 years) and my oncologist said that no other PET scans are necessary. I wonder if that is a good idea and feel like pushing for at least a PET at the 5 year mark. If nothing else really for my emotional well being as otherwise I worry about anything that could be. What is your protocol?