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Happy Anniversary?

foxhd's picture
foxhd
Posts: 1899
Joined: Oct 2011

I think?  3 years ago today I finished my workout and had a good 2.5-3 mile run. I have exercised regularly since a teenager. I've run for over thirty years. (and are my legs tired!) Anyway, I had decided to approach my 60's by trying to reach a peak in my fitness. My mission statement was that when I died, I wanted to be in the best shape of my life. I told people that often. So, anywho, that afternoon I told my wife that I felt AWESOME!! I told her that I was feeling like I was in my 30's again. Incredible! I remember it well.

Well,......that night I was doubled over in pain. Peeing blood like crazy. Scared me good. I made it to daylight and in the ER, I got the diagnosis. Kidney tumor. I had to be admitted for pain control and had my nephrectomy a couple days later. No waiting around for me. It happened fast. Little time to dwell on it. If you got to do it, that is the way. But I digress. as usual.

So I guess tonite is pizza and beer night. I'm not sure a celebration is in order. But to hell with it. Probably more importantly, it is 2 years this month that I was told would be my demise. Too advanced to treat. "Nothing is effective" I was told. (Jack, this was my "quickening.") And here I am. No longer in the best shape of my life but in real good shape. Heck March is kinda special. I also turn 62 in a couple weeks.

Damn! life is good!

There are more answers out there than ever for kidney cancer. Be your own advocate and persue them.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

May you have many many more!

A married couple were celebrating their 60th wedding anniversary. At the party everyone wanted to know how they managed to stay married for so long in this day and age. The husband answered "When we were first married we came to an agreement. I would make all the major decisions and she would make all the minor decisions, and in 60 years of marriage we have never needed to make a major decision."

 

 

Darron's picture
Darron
Posts: 220
Joined: Jun 2013

Another couple, originall from Italy, was celebrating their 50th anniversary. Vinny, they asked, what is the secret to 50 years of happy marriage?

he said " for our 25th, I took my wife to Italy to celebrate our homeland."

everyine said "that is great, what are you going to do for 50?"

"I am going to go back and pick her up."

 

Enjoy it Fox, I'll drink a cold one tonight in your honor. 

mdb2387's picture
mdb2387
Posts: 8
Joined: Mar 2014

Inspirational story..So glad you are doing well!!

GSRon's picture
GSRon
Posts: 1217
Joined: Jan 2013

Happy Anniversary Fox Man..!!  Wait up, I am a year behind you..!!  Wink

Pizza and Beer sound good...

Ron

CommuterMom's picture
CommuterMom
Posts: 120
Joined: Jan 2014

Hey,

Congrats, that is really awesome.  You shold definately celebrate life and health.  I'm planning on starting a new health plan myself.  I just read a book by Dr. Joel Furhman called Eat to Live and it made a lot of sense.  I'm going to Vegas on Friday for a business trip where I plan on having as much pleasure as possible.  I'm jumping on the plan upon my return.  It should be a good way to detox the Vegas away.

- Diana Cheers!

nsb748
Posts: 61
Joined: Feb 2014

Fox, I keep forgetting to ask the doc how long until I can drink a few beers, but once I can, I will hoist a few in your honor.

well done sir

 

 

Thomalexa's picture
Thomalexa
Posts: 6
Joined: Aug 2013

Fox, 

I "joined" this club last year and I have so many questions that haven't been answered. Google sure is a poor substitute for trying to find things that pertain to Kidney cancer. Brief synopsis: 

Diagnosed just before my 37th birthday - multiple tumors on both kidneys. I had an open partial nephrectomy on the right kidney on 1/16/2014 that turned into a complete nephrectomy; they couldn't save anything. I'm scheduled for another open partial nephrectomy on my left kidney on 4/2/2014. The doctors say I have a few less tumors on the left than I did on the right and the bigger one is in an "easier spot to operate on." They're putting the odds of saving anything at 50/50. 

So, I'm blessed that I'm a software engineer and that I was able to return to work only two weeks after my first surgery. I'm the breadwinner of the family. I'm praying for a good surgery on 4/2, but what does "good" consist of? Complete cancer removal only and loss of all kidney function? Sure, being cancer free would be good, but I'm kinda hoping for a greedy good; cancer removal with SOME kidney function. 

I know it's a lot to ask. I'm just dreadfully afraid of going on dialysis and how much that will alter my life. I'm normally an upbeat person, but as the second surgery draws closer, I become more anxious and sad. 

That first surgery wasn't an easy one. The docs say I did wonderfully, but I was under for a really long time. To the surprise of the doc and nurses though, I was stubborn about getting out of bed and walking the next day. I'm no fitness freak, but post surgery, I've lost quite a bit of weight simply from not eating as much as I used to. Funny thing is, aside from being tired from time to time, I feel pretty dang good. 

So, yeah...Happy Anniversary..with a question mark. It's certainly a mixed blessing. I don't think that anyone who hasn't gone through this could understand the multitude of emotions that go with such an anniverary date. 

God bless

Thomas

foxhd's picture
foxhd
Posts: 1899
Joined: Oct 2011

Thomas, having tumors in both kidneys is not what we regularly see. Sorry. My thoughts are that even with a good health report, it can change severely and rapidly. Again, try to enjoy every minute while it lasts. Both my mom and sister were on dialysis but only I have kidney cancer. Strange? ...You are so much younger than I. That makes a big difference in perspective. I always say that at least I hit my sixties. I feel badly for anyone younger. But to answer your querey, Yes, people can live a long life on dialysis.

Thomalexa's picture
Thomalexa
Posts: 6
Joined: Aug 2013

Fox, 

I "joined" this club last year and I have so many questions that haven't been answered. Google sure is a poor substitute for trying to find things that pertain to Kidney cancer. Brief synopsis: 

Diagnosed just before my 37th birthday - multiple tumors on both kidneys. I had an open partial nephrectomy on the right kidney on 1/16/2014 that turned into a complete nephrectomy; they couldn't save anything. I'm scheduled for another open partial nephrectomy on my left kidney on 4/2/2014. The doctors say I have a few less tumors on the left than I did on the right and the bigger one is in an "easier spot to operate on." They're putting the odds of saving anything at 50/50. 

So, I'm blessed that I'm a software engineer and that I was able to return to work only two weeks after my first surgery. I'm the breadwinner of the family. I'm praying for a good surgery on 4/2, but what does "good" consist of? Complete cancer removal only and loss of all kidney function? Sure, being cancer free would be good, but I'm kinda hoping for a greedy good; cancer removal with SOME kidney function. 

I know it's a lot to ask. I'm just dreadfully afraid of going on dialysis and how much that will alter my life. I'm normally an upbeat person, but as the second surgery draws closer, I become more anxious and sad. 

That first surgery wasn't an easy one. The docs say I did wonderfully, but I was under for a really long time. To the surprise of the doc and nurses though, I was stubborn about getting out of bed and walking the next day. I'm no fitness freak, but post surgery, I've lost quite a bit of weight simply from not eating as much as I used to. Funny thing is, aside from being tired from time to time, I feel pretty dang good. 

So, yeah...Happy Anniversary..with a question mark. It's certainly a mixed blessing. I don't think that anyone who hasn't gone through this could understand the multitude of emotions that go with such an anniverary date. 

God bless

Thomas

donna_lee's picture
donna_lee
Posts: 400
Joined: Feb 2009

Now that would be a sight...and make your eyes sore at the same time, Fox.  We like anniversaries around this board because if means someone has been successful, especially the patient.

Glad to hear you're at three years!!!!.  You've been through a lot.  By now, you should have already enjoyed the pizza and beer on East Coast Time.

Take it easy and enjoy your celebration.

Donna

GSRon's picture
GSRon
Posts: 1217
Joined: Jan 2013

Thomas, welcome.. sorry you need to be here.  I am wondering.. did you not have any Chemo..?  Are you in the care of a Cancer/Renal  Oncologist..? 

Good Luck..!

Ron

sblairc's picture
sblairc
Posts: 96
Joined: Feb 2014

Thanks for sharing your story. My husband was also diagnosed in the ER and he also never left the hospital until after his Nephrectomy due to intense, frequent episodes of pain that even the toughest pain meds could barely take the edge off.  I only left his side twice the whole 9/10 days. Your anniversary truly is worth celebrating with pizza and beer. 

Srashedb
Posts: 180
Joined: Dec 2013

I thought that term meant the first movements of the fetus felt by the mother.... But, happy anniversary to you!

Sarah

foxhd's picture
foxhd
Posts: 1899
Joined: Oct 2011

Sarah, I never heard the term before. Scagway Jack used it to descibe the moment when you know something catastrophic is about to happen.

Thomalexa's picture
Thomalexa
Posts: 6
Joined: Aug 2013

Ron, 

I am seeing an oncologist. I was on Votrient for about 6 months. There were shrinkage on all tumors, but not significant enough for the doctors to want to continue treatment. They were worried about the drugs not working at some point and the cancer spreading. 

"curative window" is the term they used. 

Thomas

NanoSecond's picture
NanoSecond
Posts: 524
Joined: Oct 2012

Thomas.  I am very sorry to hear what you have been dealing with.

However, as Fox pointed out, your case is rather unusual for at least two reasons.  One, you are still young.  Two, you have bilateral tumors (both kidneys are effected).  This normally is an indication that you may have an inherited version of renal cancer.  If so, the question is if there is any other history of renal (or other) cancer in your immediate family?  Regardless, have you and your oncologist discussed any sort of genetic testing?  Finally, your kind of case fits into what the NIH/NCI likes to study in depth.  If you have not done so I suggest contacting them ASAP.  Even if they are not directly interested in your case I bet they can give you lots of ideas on how to best proceed.  You need to hear what they are.

Best wishes,

-N

Jojo61's picture
Jojo61
Posts: 366
Joined: Oct 2013

Hi Thomas,

Thank you for sharing. You have lot on your plate. i am glad you shared your story with us. I hope that Nano's advice will be helpful.

Take care and keep sharing! We are here for you!

Hugs,

Jojo

angec's picture
angec
Posts: 621
Joined: Mar 2012

Happy BEATING The Odds, Fox! I feel comfortable with that! That is why we say "you da man!"  I am glad that you didn't take no for an answer! There is always another option no matter what they say.  Here is to another 3 years+.  

 

Thomas, sorry to hear all that you are going through. I like that fighitng spirit!  Have you sought a second opinion? What hospital are you going to?  I think the goal with these drugs is to keep the tumors stable. Anything more than that is an added blessing.  So, if you have shrinkage and no mets or growth anywhere else, why would they stop the votrient? RCC is now treated as a chronic disease.  Chronic meaning life long taking drugs.  It would be great to be cancer free if they can save the kidney or at least half of the kidney. Did they say what type of RCC it is and have you gotten a second opinion on those slides also?  Are you a member of smartpatients? If not you should join. There are lots of experienced people on there as well.  Praying all goes well on April 2.  Keep up that fighting spirit! Please keep us posted and let us know how you are. We care about you! XX Would you care to share your path report with us?  Please be sure to get copies of all of your tests results.  I just read Neil's post.  All he said was excellent and i would seriously call asap.

Cate1273's picture
Cate1273
Posts: 31
Joined: Feb 2014

Congratulations Fox!  Three years is awesome. And many more to come!

Cate

Jojo61's picture
Jojo61
Posts: 366
Joined: Oct 2013

Happy Anniversary, Foxy!

It is a wonderful anniversary to celebrate!! You rock!!

Enjoy your beer and pizza!

Big Hugs,

Jojo

brea588's picture
brea588
Posts: 114
Joined: Jul 2012

Happy Anniversary to you!!!!!  Enjoy the pizza and beer and have a good time. 

Skagway Jack's picture
Skagway Jack
Posts: 70
Joined: Oct 2013

Fox,

Happy Anniversary!  You continue to be a great role model for all of us fighting this disease.  Thanks for sharing your "quickening moment".  Cold beer and pizza is an excellent way to celebrate.  I consider pizza a food group unto its self!  Best wishes..belatedly.

danbren2's picture
danbren2
Posts: 183
Joined: May 2013

Fox,

     You have been through so much in a really short period of time! My 3 years will be in August, and they have been nothing like yours! I am honored to know such a fighter! Hope the next 20 will be even better! Thanks for always being there, it does make a difference!

                                                 Love and prayers for good health!

                                                  Brenda

Jan4you's picture
Jan4you
Posts: 184
Joined: Oct 2013

Fox your story is amazing as YOU are as well! Life changing is how I view all this with little surprises along the way.

Just wonder when your birthday may be??? I just had one, feel grateful you know?

 

Many more good experiences touched by love and acceptance.

You are the poster boy of amazing, hopeful attitudes!!!

See you next year~and the next, and the next..and..

Jan

foxhd's picture
foxhd
Posts: 1899
Joined: Oct 2011

3 years down. Another 20 to go. I still think that I've had it easier than most. Living great at the moment but the old scan routine is in a few weeks. Due for both brain scan and chest, abd, and pelvis. I don't think I want to go looking for trouble, but we all know the drill. Doesn't it seem like every new scan is a big one? Gotta do it. This one should tell alot. I haven't had any medication since the IL-2 in october. It will be about 6 months! Cold turkey. ..Well there is zometa every 6 weeks but that is nothing. Makes me wonder how my bones are holding up. But since I am painless, any cancer left in them isn't too active. You know, I like being a cheerleader better than a player. In any event, I look forward to a wonderful year......of being a cheerleader.

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