Mar 06, 2014 - 4:52 pm
I am pretty new to this site. I am hoping someone can tell me what to expect next. My brother age 42 was diagnosed with stage iv colon cancer and liver mets on 26/11/2013. He has gross ascites and needs to have a tap after every 5 days, He has gross ascites which is very uncomfortable and painful. He has always been health conscious and displayed absolutely no sign that his body was sick. In Feb 2013 he was diagnosed with Hep B which he contracted from his work as an animal scientist. Various tests were done and after a few weks his blood results showed that he was clear of Hep B but anaemic. In May 2013 he complained of pain in the lower abdomen and his doctor had advised that he had been suffering from inguinal hernia but it could be repaired. Whilst waiting for the hospital staff to get back to us regarding dates for surgery (took about a month before a date was allocated for surgery) he began compalining about indigestion and the inability to finish up small meals. I had scheduled an appointment with my doctor again and again various tests were done to ensure we were moving in the right direction. By this time the inguinal hernia was not longer as cause for concern, the digestive track was being scrutonised. An endoscopy was done and that came back negative and no abnormalities were detected. A barium swallow was conducted andof which he couldnt drink more than a glass of that yuckie fluid. The swallow detected a blockage in the spleenic Flexture and this motivated the doctor to do an ultrasound of the abdomen. The ultrasound sound reflected gross ascites and multiple liver lesions. Further to that a CT scan was conducted which confirmed a 40cm tumour, peritoneal seeding, multple lesions in both lobes of the liver and with that shocking report the doctor concluded that my brother had 6-8 months to live.
At first I was very emotional but I have also learned from life challenges that only God can determine what life would be like for each of us. However, my concern is that my brother has been given no treatment and no doctor sees the urgency in this matter. It is as if they know he is going to die and they dont want to waste time and government money on him. I have tried the medical insurance plan that I had secured for him last year some time but through investigations of which I was not aware of, they concluded that his condition is pre-existing and they refuse to pay. Unfortuantely, we have no choice but make use of the community facilities and local hospital services. He had undergone to 4 colonoscopiesand still they are not able to give us the results of the tissue samples in order for us to receive a referral letter for oncology at the hospital. At this point I am totally frustrated because there is so much of red tape and everything that could have stopped this whole process has cropped up.
can somebody please help me. We reside in South Africa and treatment is very expensive so going to a private hospital or a specialised doctor is not an option for my brother. I dont know how to get him the help that he need. Can somebody suggest what I could do or say to get the doctors to give this situation some attention.
I know I sound like Im babbling but I feel so stressed, confused, helpless and hopeless.
His condition is deteriorating every day. Tonight he has a very distended stomach, gross ascites, terrible constipation, extreme pain (doctor said he cannot prescribe any pain killer apart from paracetamol until the tissue sample results come back from the lab and that has been since the first biopsy in November), Feet and ankels are swollen and he is out of breath.
Somebody please help me!!!!!