Feb 18, 2014 - 12:22 pm
Been lurking around since the beginning of the year. A brief timeline of my diagnosis is below.
1/3/2014: Went to family doc because of a testicle pain (thought it might be a vericocele) Doc ordered an ultrasound to see what the problem was.
1/4/2014: Had ultrasound, (no testicular issues). They check the kidneys also to rule out stones and saw a mixed echogenicity mass. 2.5cm by 2.7cm. Still not worried since the doc says cysts are common on the kidneys, but orders a CT with contrast to be sure.
1/20/2014: Had CT scan. Doc says she will call as soon as she gets the lab report. (still not worried)
1/21/2014: Doc forgets to call with results. I get a call from scheduling lady asking for my insurance info. She needs it to set up my appointment with the Urologic Oncologist!!!! (Fear, anger, panic, confusion ensue). In case you were wondering, this is not a good way to find out that you most likely have cancer.
1/28/2014: Meet with Urologist. He tells me that my sore left ball back on 1/3/2014 was the luckiest thing that I have ever had happen to me. (that sounds kind of depressing). He also says that based on the size of the tumor alone, my prognosis is excellent. He orders an MRI to determine the exact location of the tumor and plan his attack. He schedules my MRI, and also schedules a consult/war council for 2/6/2014
2/1/2014: I am 6'4" 220 lbs and discovered that I barely fit in an MRI machine.
2/6/2014: Had my consult with the Urologist. He was pleased with what he saw on the MRI. The tumor is small and in an ideal location for a partial nephrectomy. At that point he gave me a choice of an open surgery, or a robotic laproscopic surgery with the davinci machine. Based on the the doc's experience (nearly 1000 open partials) vs 75 or so each for the robotic surgery guys, I went ahead and scheduled the open surgery. I feel better about the more experienced doc actually getting in there and looking around.
My surgery is scheduled for 3/6/2014 and my pre-surgery stuff on 2/27/2014. The main problem is that I feel so paranoid now about my body. I felt amazing at the beginning of the year. I had quit smoking, and some of my cardio was slowly coming back. It was awesome.
Now I get this news and I constantly fear something is wrong. Normal aches and pains become bone mets, headaches become brain mets, A cough while playing basketball becomes a lung met, etc.
The worst part of all this is feeling betrayed by my body. Who knows what else is lurking in there. It's too bad you can't just get screened for everything.
Nice to meet you all, and I enjoy reading your various stories of survival even if they do freak me out on occasion.