Feb 15, 2014 - 7:26 pm
When I got DCIS in 2010 and had surgeries into January 2011, then had the severe nerve damage (that I am still getting pain meds and treatments for, then LE, in addition to all the other crap I have, I never got mad that I got cancer and rotten side effects.Irritated with LE, but never mad. I never got mad that I got Leukoairioses on the brain that causes dementia and cognitive issues.
When I was initially diagnosed with hypersensitivity pnuemonitis and lost 15% of my lung with a painful thoracotomy (they had to cut right into where I already have nerve damage pain), I never got mad.
I sure as heck have gotten super mad at some of the incompetent doctors, surgeons, CNA's, nurses/medical assistants.
This past week, I had my lung CT Scan and breathing tests and got the results from the doctor on Thursday.
For 18 days, I all of a sudden stopped taking the correct dosage of Prednisone. I was supposed to be on 40 mg a day, but for some reason, screwed up and only took 20 mg. When I figured out the mistake, the light bulb went on as to why I was not as wound up and had symptoms returning.
The lung dr. told me there is a mild progression of inflammation in the middle of my lungs, but as far as he can see, it has not formed a fibrosis/scarring. I had some enlarged lymph nodes in the middle of my chest and those have gone down.
So overall, I got pretty good news. The progression may be from not being on 40 mg of Prednisone.
But afterwards when I got home. I got mad. And I have had bouts of being mad that I got this crap here and there. It comes and goes and I do not like it when it comes and I'm mad. I have had such a good attitude about it and I don't like the negativity. I am sure being on steroids helps the anger, but I have been on them since December 21,2013.
Thanks for listening/reading and letting me vent. I am mad and don't like it.