Feb 12, 2014 - 12:48 pm
Familair story, and I am looking for your thoughts and or advice.
During my annual physical my PSA was 130. THis was up from 3.2 two years ago. I was refered to an uroloigist whom performed a targeted biopsy. As a result my Gleason socre was 8. The bone scan indicated mestastases in the back and hips.
I did not and still do not have any symptons.
i was immediately given a shot of Firmagen. Nov 2013.
Following the inital disbelieve, I arranged visits for second opinions to Tufts Medical and Dana Farber in Boston.
Both onconlogists suggested looking at clinical trials and adding bicalumate to the Hormone Therapy. During this process, we identified a Phase III clinacal trial evaluating TAK-700 in the castrate sensitive phase. I was accepted to the trial and am currently on a Lupron/bicalumate treatment regimine. I have respond well according to all the physicians. A bone density scan was normal and to date I am not having any side effects from the HT.
I am a 55 year old male, husband and father of 17 and 14 year old girls. As the treatments have not really effected my quality of live I have not told my daughters and my 82 year old father what is happening. My brothers are aware of the diagnosos. I have spoken with a couple of close friends and my wife has been very supportive but is extremely stressed.
Fortunately we are finacially stable and have begun to do some finacial planning based on a 5 year, 10 year and greater life expecantcy.
The next hurdle is the wieght loss and excercise.
My PSA levels to date are below.
1 - Should I be more agressive in my treatments (the Dana Farber Dr. thought radiation might be an option)
2 - Is there a national expert I should see besides what is available in New England?
3 - Is the story I am geeting from my Dr's reasonable. Not much else to do except wait and see how long I remain castrate sensitive?
Any comments are appreciated. Not looking for sympathy as this is part of life, just some advice and maybe some sharing of your story to help be get a handle on what we face.