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Will a stomach bug, fever or cough ever again be just that?!

cxiss
Posts: 1
Joined: Feb 2014

Hello all,

I am new to this board and I hope there are some parents of kids who battled cancer that can relate.

My daughter was diagnosed with Orbital Rhabdomyosarcoma last year in March and went thru 6 months of chemo and 25 sessions of radiation. In September of last year we got the hear the magical words of NED (no evidence of disease) as well as in December went we went for a check up. She has to do 3 month check ups for the next 3 years and now that her check up in March is approaching I find my self going crazy with the what if's.

Fighting cancer and fearing for a life of your child is most excruciating battle one can be handed. To see my 3 year old endure what she has in the last year is devastating, unfair... but yet very rewarding because she is still here with us.

As a parent you always wanna protect and cure your child and for parents of child who has battled cancer this is magnified times a million. And that's what brings me to write this post today, I'm wondering if my innocence of 'little things in life' will ever come back? Will I ever be ok with my daughter having a stomach pain without thinking the worst, and going to a very dark place? Will a fever ever be just a fever and cured with Tylenol?!

I guess my scan-xiety (as one of our nurses would call it) is in full gear and I'm just looking to hear some positive stories happy endings.

Thanks.

J.

GrantsMom
Posts: 3
Joined: Mar 2011

The answer is short and sweet. It has been 9 years since my son had cancer and I still panic ALL THE TIME! He took a 3 hour nap on Saturday. He hasn't napped in 5 years. I scoured the internet to reinvestigate his cancer, what should I be looking for? Could this be a sign? Could I get his doc to do an MRI to pacify me? The kid can't even take a nap for the love of Mary! I totally get what you're saying. The day to day stuff gets easier. Somedays you don't even think about it. Then there's a sneeze, a fever, a cough and the first thing in your head is the dreaded C word. You feel crazy most days. You're normal, we all are. This is a PTSD reaction to a tragic, horrifying event. No one gets it but us, the people who still fight with you and support you. Hang in there.

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