Feb 06, 2014 - 5:23 am
My husband decided a year ago, exactly, to stop all treatment once we found out that his cancer had spread. Laryngeal (radiation, chemo and surgery). Then a second primary at the cervical of his esophagus (radiation and chemo). NED for 4 months then cancer back at the cervical of his esophagus and spread to his right lung.
In September he decided, after our oncologist recommended, to go on hospice. While hospice has been great and we have had no problems, we are trying to decide whether to stay on hospice or come off. Something you can do. His condition is not much different than one year ago. Oh yes his pain level, energy level, desire to do anything is muchless, plus weight lost. But he is not bedridden, no breathing problems that require oxygen, is able to take care of himself and when he feels like it does some yard work, works on things, etc. He doesn't drive anymore because of the pain medication.
Yes hospice provides everything that is needed for his cancer, pain medication, tube feeding nutrition and general supplies as long as it deal with the cancer. And no we don't have to pay for anything but yet when I see what Medicare is charged and what is paid it makes me wonder what hospice is doing for this type of monthly charge. And yes I realize things could change overnight. Of course, he has to be recertified this month for the next 2-3 months but we were told that due to him being classified terminal cancer there isn't a problem.
So, if it was you or your loved one, what would you do? Thanks for all help -- Sharon