Jan 30, 2014 - 9:33 pm
Just checking in. Started my 2nd session today. Each session is 1 week taxol and ebitux then 2 weeks of only erbitux. No nausea. 4th week I still have my hair, it has started to hurt and thinned some this week. Imagine it will be gone within the week. Some acne rash but not too bad, a light make-up covers. Thanks, for the input on the rash Matt, that really eased my mind and it was not worth the worry and anticipation. Tender pads on thumb and index fingers but not split open and no pain. At the end of 2nd session, I will get another CT to see if we go for 3 sessions before SBRT, stop at 2 and go with the SBRT or, if there are any other recurrances show up, will have to rethink plan. Will rely on Mayo for final decision. Prayers that there is nothing new on scan in 2 weeks. One guy brought in a full sheet cake today as he finished his 100th session!. I asked the nurse and she said each of his sessions was 3tx so he had been there 300 times! He looked good and has a fantastic attitude. Another man, in his 70's was back being treated 8 years for pancreatic cancer which after 5 yrs.of remission has spread to his liver. 5FU had held it at bay but was no longer doing the job. They have made huge strides with that cancer. The family right next to me was a joy to be around. A 50 yr old man, wife, two sisters, Mother, and 3 friends. Sadly, he also had pancreatic cancer that has now shown up in his lung. He is being treated by MDAnderson and had surgery there but getting his chemo at home, here in St Louis. Small world, his son is a friend of my nephew and they had been to my brother's house for my nephew's graduation party.
So far, I've had one down/lazy day a week following tx.usually Saturday or Sunday. I was told today that my immune system would be most vulnerable in 10 days. Last week my white count had dropped but today back to normal. Vitals text book perfect. I forget Hohn catheter is even there and Glad Press n Seal is awesome to cover it when showering. Have never had a port but speak highly of the catheter. When I asked about difference, ONC said Hohn was good for short term situation. Since getting it, the old stiffness in that shoulder has actually eased up. So far pleasantly surpised on how tx has gone :-)