Jan 28, 2014 - 1:13 pm
I have hyponatremia which translates to low serum sodium levels . Normal is 135-145 . Mine is around 125 - 126 . In order to keep my sodium levels up I have to include a truly large amount of salt in my diet . In order to achive a level above 130 I have to eat on the order of 16,000 mg of sodium . After consumning that amount of sodium the highest my sodium has been , since starting cancer treatment , was 135 . A requirement of getting Nivolumab is that serum sodium levels have to be above 130 so , as you can imagine this is very important to me . I have to consumn the 16,000 mg of sodium early in the morning before I go for treatment and while making the over one hundred mile drive to Ceveland . That is every three weeks . Between time I eat large amounts of salt on my food . If I don't the result is horific muscle cramps . I'm getting severe cramps in my fingers and thumbes just typeing this .
I recently found an article at www.news-medical.net . If you want to read it just go to the site and type " low sodium levels " in the search field . It really got my attention . It stated that people with low sodium are less likly to respond well to targeted treatment for kidney cancer . Also less likley to survive and possibly even more likely to get kidney cancer in the first place and to have more aggressive cancer growth . My tumors were growing very fast during the time I was on Sutent before starting Nivolumab .
This caused me to start wondering if any of you guys have low serum sodium levels ?