Jan 24, 2014 - 2:33 am
Overdue to get checked at end of November but finally found an ENT HNC surgeon I trust, at least I think so. He did the scope thing, everything looks fine. One nice benefit of scopes rather than scans is you got zero wait time. Perfect for the instant gratification generation.
I asked about scans and his take is PET is subject to excessive false positives resulting in lot of chasing around for not. I am OK with that, especially since the trend the past year is to reduce use of PET.
CT - He says do NOT show tumor growth very well in the neck/throat/BOT area. I'd not heard that mentioned much here.
MRI - He feels this is the best way to see what is going on in the oral cavity and throat area. Plans to schedule one at the one year post mark (June '14). Meanwhile, he wants to see me every 4-6 weeks for a checkup and scope.
I mentioned PET would pick up distant tumors. He agreed but indicated more or less that if that is the case, then I basically got handed a ticket on the palliative train. Rationale is once it shows up distant then even though there may be a single tumor the likeliehood of it having spread elsewhere is quite high. Not sure I agree with this view. Still digesting that one and will do a research dive. Clearly, if recurrence occurs back in the throat, oral cavity, or neck area it is armour up and back to battlefield. It is not so clear cut recalling those who had distant recurrence and are still typing away here or remembering their course of action.
I'm not one to do the what if dance but if the day comes where they discover distant mets, you can be certain I will seek MO and RO opinions and multiples of them before throwing in the towel before the bout even starts.