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malignant fibrous histiocytoma (undifferentiated pleomorphic sarcoma)

lmcraig
Posts: 4
Joined: Jan 2014

My mom had a 14x9cm MFH sarcoma removed from her hip in June 2012.  After 36 radiation treatments and multiple complications including having to wear a wound vac for over 4 months, then wet-to-dry dressings, last CT in September showed mets to lungs...aggressive mets to lungs.  Chemo started same month, last CT showed no more growth but minimal shrinkage of tumors.  Waiting on results of last CT which we will receive tomorrow.  I am finding it extremely difficult to obtain ANY information or blogs recounting personal stories for this type of cancer with metastasis.  People post, then there is no continuation which is extremely disturbing to me.  To anyone who is reading this, I am asking to hear from you.  The information I am finding recounts an abysmal prognosis.  My mom has the idea that she is going to beat this, however I am a registered nurse and am quietly and sadly nowhere near as optimistic.  FYI: after chemo started, her wound opened back up and granulation of tissue halted.

ISurvivedCancer's picture
ISurvivedCancer
Posts: 2
Joined: Jan 2014

Hi lmcraig

 

your Mom's first defense is she going to beat it.  "Beating it" may be a few months or years.  No matter how long she beats it, it will be her victory.   You may find support at the following websites:

http://www.sarcomaalliance.org/

http://www.curesarcoma.org/

 

 

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