Jan 14, 2014 - 11:14 pm
I wasn't sure I wanted to post this time around. But it's been a long journey. I had a very long visit with my primary today. We talked of many things, but mainly quality of life issues for me. I graduated high school with this fellow. Seems like a different lifetime. We've decided to change up my pain medication to a time released morphine. And adding once again the gabapentin for the nerve pain I'm experiencing. I have many things to consider, and facing things head on is something I've prided myself on all my life. Most of my noduals in the lungs have stayed stable...one little bugger is growing since the past scan.
I will be having a sleep test done in home to satisfy Medicare to pay for home oxygen therapy. I laughed so hard at this one. But o.k. whatever it takes. I need to show them that the lungs are below 90 sats....won't be hard, and wouldn't take 24 hrs to prove. I bounce between 80 to 87. My life is changing.....but I'm going to give it my all and live life as I want to.
There wasn't an experation tag attached to our talk. But we locked eyes and I told him it was all good...I accept it is what it is. So for today my friends I will continue to stand with you and for you. Nothing but the best wished for you all. Hugs sent ! Katie