Jan 10, 2014 - 4:54 pm
31 year old male with the fun brain tumor :) I am took temodar for 9 months, even though I had both chromosomal depletions, it did nothing. I stopped. I refused radiation, They can not operate because of the location. I am on keppra for antiseizure medication. Anyone have any success stories? I was diagnosed about a year and a half ago. With LOTS AND LOTS of research. I simply see no reason to do chemo or radiation. They do nothing. I eat extremely strict, workout daily, and the tumor has barely grown at all. I have had about 3 gran mal seizures since I was diagnosed, but have been seizure free for about 5 months.
I truly believe the current medical model to treat these tumors is a complete joke.
Anyone from around the chicago area have any good dr.'s to recommend? I have had 2 that I fired because we did not see eye to eye. I like nontraditional medicine and approaches as compared to radiation and chemo. I have seen people with the same grade (II) as me, have surgery....and die....have radiation....and die.... so I continue to live. I can tell my mood changes, I get tired, but it does not stop me from working as a full time teacher, continue natural bodybuilding as a hobby, and live a happy life. I just need a dr. that doesnt have their head up their ass.
Thanks in advance. It could be worse, I could be in a casket! lol