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Husband's radiation starts tomorrow

Double Whammy's picture
Double Whammy
Posts: 2259
Joined: Jun 2010

Well, we're ready for hubby to begin radiation treatments tomorrow.  I think we have our ducks in order.  He had his first injection of Trelstar about a month ago followed by 10 days (I think) of Bicalutamide.  So far so good.  He says he has not noticed any side effects and here's hoping the radiation will go without any problems and there will be zip PSA after. 

When I had radiation, I was given advice on skin care.  He hasn't been told anything about that (yet).  I also saw the radiation oncologist weekly.  Can anyone tell me what to expect in regard to skin care and rad onc visits? 

Thanks!

Josephg
Posts: 22
Joined: Jan 2013

Hi DW,

A female friend of mine had radiation treatments and advised that she had significant skin irritation issues, and she had to use skin care products (I do not remember what) to help ease the irritation.  So, I was expecting them, when I had my radiation therapy.  As it turned out, I had no skin reactions or issues whatsoever during my radiation treatments.

Regarding the Radiation Oncologist visits, I am assuming that you are referring to the weekly visits with the rad onc during the treatment period.  My weekly visits, lasting about 5-10 minutes each, consisted of simply answering questions related to (1) bowel movement/consistency and urinary changes, (2) blood occurrences, if any, in the stool or uirne, and if so, what frequency, (3) the extent of fatigue being encountered, and (4) if there were any unusual pains or other symptoms that arose during the treatments.  In reality, the attending nurse asked all of these questions and entered the answers into the database each week, before the rad onc walked into the exam room.  Further, the nurse offered advice on any answers to questions that were out of the ordinary.

If you want to share my radiation treatment experience with your hubby, you can find it here.

http://csn.cancer.org/node/188931?page=5  titled Salvage Treatment

 

I wish your hubby the best of luck during the treatment period and afterward.

BLUEpac6
Posts: 31
Joined: Jun 2012

2009 I had radical surgery and in 2011 my psa rose to .06 and was told I needed salvage radiation and began 35 treatments with no side effects at all you could never see any discoloration of the skin at all.I never knew I was getting radiation except they said I was. For 2 and half years now my psa is less than .01. Pray your husband does fine.As far as weekly visits with the oncologist I do not remember any the person giving the treatments might ask me how I felt.

Double Whammy's picture
Double Whammy
Posts: 2259
Joined: Jun 2010

So we drove to Sacramento this morning (about 40 minutes) only to sit in the waiting room for 30 minutes and to learn the darn thing broke down and engineers were on the way to fix it.  So we'll start tomorrow.  When I was having radiation (at another facility), the stupid machine broke down at least 3 times.  Of course, if you ask how often this happens, they tell you never or almost never.  Well, I wonder . . .

He got questions answered about skin care and doc visits and they are consistent with your answers.  They explained that a larger area of skin is being radiated for breast cancer, while with IMRT, it is a beam that passes through the skin and sort of envelops the area radiated inside (or something like that).  He will see the rad onc weekly. 

Thanks for the feedback.  Nice to know that this will likely be painless and quick.  We'll try this again tomorrow. 

S

VascodaGama's picture
VascodaGama
Posts: 1511
Joined: Nov 2010

Suzanne

Just to wish your husband an eventless treatment. The “false” start is typical in IMRT machines. I also had one-day postponed because of equipment maintenance. These machines got low allowances (0.XX mm) in precision so that they stop operating for the good of the treatment and of us (lesser collateral damage).

In my experience with RT at the age of 56, I never felt fatigue (played golf on weekends) or nausea or anything that impaired my daily routine. I had a sensation of burning pain on my fifths’ week of treatment when urinating and the stool became much liquefied with traces of blood (proctitis), although no skin burning marks. My doctor gave me medicines including a cream for the skin in case of need.

For the ones following your case, here is your story:

http://csn.cancer.org/node/263159
http://csn.cancer.org/node/264459

Best wishes for 2014

VG

lewvino's picture
lewvino
Posts: 1004
Joined: May 2009

Good luck to your husband on his treatments. I finished 38 treatments the End Of October. I had no effect on the skin. My only side effect started about the third week in and I would get extremely tired. Mostly towards the end of week.

Other then that all was good and I'm waiting for February to roll around for my first post radiation PSA test.

Oh, yes, had the machine break down only 1 time during treatment cycle.

Lewvino

 

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