Jan 03, 2014 - 9:44 pm
Hello to everyone on here. My Dad was diagnosed on June 25, 2013 with stage 4 RCC, on July 9 we has a appointment for treatment options. To make a long story short, we got a apology tour , tort reform and apology letter. We did not meet with Doctors but with administration. They told us that his scans they did 2 years ago had him diagnosed with stage 4 Rcc, with a prognosis of eight months. Well at this point looking at the scans, we thought he had a very slow growing cancer. The tumor on the kidney and the mets in the lungs grew very little. My dad is 64 and very active, he is a building contractor about 5'9" 185 lbs. At this point he did a lot of research and he bought a juicer and started Gerson Therapy, he said he was going to do it for 3 months and get new scans. This is wear the horror story begins. At this point around July 15, he has all of the equipment, the enemas, the organic food and juicer. Of course he is losing quite a bit of weight, which we thought was normal from the juicing, but everthing was going down hill in a hurry. Some time in October he fell down and hit his head, i rushed him to the emergency room. He has 4 brain mets or tumors and his lungs more have showed up.They did 10 Days in a row of fullbrain radiation. Days 1-5 no side effects dys 6- Today have been horrible. The hair, taste buds, and salivia glands are burnt up. He eats very little. He was 132 lbs today. The fatigue is extreme. Seems a little disoriented and lethagic. We left the VA and flew to the Clevland Clinic, they put him on Sutent 37.5 2 Weeks on 1 week off. They got us a appointment at Moffit in Tampa, which isonly 2 hours away. They drained the fluid on his lungs, this made a huge difference in his breathing. He is on day number 8 of his second cycle, i can tell a huge difference in his breathing and his caughing is almost gone. He does have thrush in his mouth and sores. He does not want to eat , he is getting 5 boost plus a day and a bite of food every couple of hours.He has a bed sore, we got it treated today. He is fighting, but the fatigue is beyond belief. Any feed back would be greatly appreciated.