CSN Login
Members Online: 9

Patulous Eustachian Tube

Coupe35
Posts: 42
Joined: Feb 2010

Have any of you had radiation to the head which cause Patulous Eustachian Tube. That's where the "E" tube does not close and you can hear yourself talk, breath, etc.

hwt's picture
hwt
Posts: 1881
Joined: Jun 2012

Haven't experienced that but it sounds very annoying. Can it be treated?

debbiejeanne's picture
debbiejeanne
Posts: 2357
Joined: Jan 2010

what is an E tube?

dj

KTeacher
Posts: 909
Joined: Jan 2011

I looked the condition up.  Seems to be many of the things that I have commented to my doctor's about.  Unknown.  Does it feel like air is escaping from your ear when you blow your nose?  I have to use a nasal rinse daily, sinus just doesn't work like it used to.  Frequently feels like something is in my ear.  For me it comes and goes along with the ringing in the ear.

Coupe35
Posts: 42
Joined: Feb 2010

Yes, that's pretty close to mine . And oh yes, the tinnitus is just about the worst part.

KTeacher
Posts: 909
Joined: Jan 2011

I haven't found much to help but I do keep ear plugs handy, some sounds and loud noises hurt!  Thanks for a name to go with the symptoms, I will talk to my doctor(s) at next visits.

Hard12Find
Posts: 203
Joined: Sep 2012

I have those same symptoms but blamed it on the cisplaitin chemo treatments, as I have significant hearing loss in both ears, my ears "pop" very easily like when blowing my nose, and also get water in my ear from just a shower, and the tinnitus is enough to make you crazy. I do have a more nasal voice than before and I can hear it in my head, not through my ears, I will do some further research...I am 14 month post treatment, and still struggling with dysphagia (swallowing), but all in all recovering well, this damned disease took just about everything from me, but in the end I won.......

Jim

 

Coupe35
Posts: 42
Joined: Feb 2010

Tell you a little more about my condition. I have lymphoma but posted here because of the location of my problem. A lymph node grew into my eustachian tube blocking it off. Had a scan and it was found. I had 20 rad treatments on the node in my nasal area and a node that was on my collar bone. Before the treatment I could not get that ear to pop because of the enlarge lymph node. After about treatment # 8 the node got smaller and I was able to pop the ear. After the last treatment had a scan and the node was gone. But, it left the tube to where it will not close. This was either due to the radiation or maybe some left over scar tissue. Anyway that's where I'm at. As I stated, the tube not closing leaves me with tinnitus, hearing myself talk thru the ear and breath thru it. After searching the internet I found that other folks had this problem and they were calling it PET. Can not get a firm answer from the ENT about this. He just says it's out of his paygrade. I believe there is an operation they can do to add more fat to get it to close but I will just live with it before getting cut on.

NeoTheron91
Posts: 77
Joined: Sep 2011

Post 24 months  for stage 4 NPC and still problem with hearing loss, middle ear fullness and ear infection. Hopefully one day all of them will go away or it's new life style for me now. I couldn't complain much for titinus from both ears.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network