Dec 31, 2013 - 4:10 pm
I've been checking in on this site since June, when my father was first diagnosed with RCC, which (according to the spread of it) seems to be stage IV (no one ever outwardly told us). He was told he had an 11cm tumor on his right kidney, and also found out the cancer had spread to his lungs, brain, lymph-nodes, and adrenal gland. This was all a shock to my family... and we have been on a hell of a ride. He had brain surgery in June and received 5 doses of radiation to his brain mets. The hospital also placed a catheter in his pleura lining since it was filling up with fluid frequently. He had began taking votrient, but found it wasn't doing much to reduce the size of his tumors and it also made him feel crummy. His oncologist at MSK decided it might be a good idea to try a clinical trial of either Everlimus or Inlyta...a day before he was going to start his testing to see if he would be a good candidate for the trial, he had a seizure do to the radiation (which was about 4 months earlier). That was a terrifying experience, that my mother and I witnessed, and we were sure he was dying. He was put into the hospital again to be watched...and during that time had his pleura catheter removed, and had a fluid pocket in his lungs drained. He was put on a steroid and Kepra and experienced loss of hip strength, since November he has needed my mother and my help to get out of chairs, take showers and get up stairs. He has also been doing Afnitor chemotherapy twice a month. As of lately he has been experiencing horrific back pain which leaves him bed-bound. He sleeps a lot of the days and when he is awake I find him staring off. My mom tells me he talks a lot about not being alive and how he doesn't understand why this is happening, he is afraid to die.
He is such a strong man, who has been through so much in his life and I am afraid for him. I don’t want him losing faith, I can see him slowly fading off. He barely eats or drinks, he doesn't talk... he is someone else. All I want is for this year to turn around, I want to see him living his life...seeing him in bed all day is heart breaking especially since I know he doesn't want this. I am so scared of what this year has to bring... but this forum gives me hope. I have read a lot of survivor stories, and it restores my faith.
I don't talk about my fathers illness, so it was difficult writing this.
I hope you all have a happy and especially healthy new year, bless you all <3