Nov 26, 2013 - 3:07 pm
Had my follow up petscan last week, 3 months after my last chemo/rad treatments. Yay, came back negative for anything! Doctor says I'm in remission, they won't call it a cure until after a few years of good check ups. He doesn't need to see me for 3-4 months.
The biggest discomfort I have right now is the temporary trache I've had for 6 months is driving me crazy. Also swelling under the chin (lymphnodes) that is hard and painful especially in the morning. I'm doing the massage and exercises. Plus the trach has rubbed sores on my skin.
I haven't had a voice for 6 months but it's coming through just a tiny bit, very very quiet and raspy. Congestion isn't bad anymore, it was awful! ENT won't take out the trache until he is sure the swelling is gone around my larynx.
Question for you guys. My blood pressure readings are all over the place. For weeks I kept a chart of readings at home and they were great. I go to the doctor's office and it is scary dangerous high. I think I have white coat syndrome. Just wondering if you think your treatments had an effect on your blood pressure. I know this trache stresses me out.
However..have something to be very thankful for this Thanksgiving! yay!