Nov 23, 2013 - 2:08 pm
So discouraged after reading post of what is it like when treatment ends. I honestly do not see how I can get through this. I have only 8 rad treatments done so far, 1 failed g-tube surgery, 2 failed attemts at replacing it (it was closed up). My mouth sores are so bad they are now on the back of my throat and both sides of my tongue that R/O is starting a new treatment plan on me Monday (missed all but one treatment this week due to the g-tube fiasco and the hyper reactive response to radiation). Have lost 5 Lbs since Monday;s surgery and I honestly do not know how I can manage the mouth pain.
I manage to get cream of wheat down in the am, then a protein/fruit smoothie with glutamine for lunch, some mashed thinned out sweet potatoes and muscle milk for dinner. It is very painful to do any of it and I take Magic Mouthwash a little while before I eat or drink and have been using the Mugard since Thursday, but cannot see any improvement. I rinse with baking soda salt and water frequently and especially after eating. Have ordered the boost vhc from amazon but it won't come until after Thanksgiving.
I stopped taking Percocet after surgery Wed. and now take Tylenol or Nap. Sodium which sometimes burns if it gets stuck. I may have to go back to the Percocet just for the mouth pain now but do not want to as it makes me feel worse.
I think I have read the super thread several times and most comments about how to do this and nothing seems to be working right now. Really do not know how any of you tolerated the painful sores. I guess I will have to go into a drug induced fog to get through it but that is not what I want to do, nor do I think it is healthy for anyone's body. Going to try a meditatin tape and see how that goes.