Nov 17, 2013 - 7:43 am
After experiencing perineal pain in August 2012 and being treated eight months chiefly with antibiotics for prostatitis, I was finally biopsied March 2013 with both adeno (Gleason 9) and much rarer (<200 cases/year in the US) small cell prostatic cancers. I have subsequently undergone traditional cisplatin/etoposide chemotherapy and IMRT (low-dose radiation therapy) and thus far, other than painful and probably permanent neuropathy from the cisplatin, I am asymptomatic from either disease. However, I am assured there is no protocol or treatment for the highly metastatic small cell disease which kills 60% of victims the first year and 80% of survivors the second. I go for a PT scan this week to see where it might have spread -- bones, brain, lungs, or lymph nodes seem to be the next stop. I would like to contact those stricken with this kind of cancer to find out their treatments have been and to understand what I can expect most likely this year as the disease seeks out a new organ to destroy and kill me.