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CSN sisters and brothers How are you doing? Please check-in

New Flower
Posts: 3996
Joined: Aug 2009

How are you doing? CSN sisters and brothers Please check-in 

Approaching holidays keep us busy and occupied. Medical appointments take additional time and for some of us are almost like a full-time job. I have been wondering how everybody is doing especially those who have not posted for a long time.

Please tell us a little bit about what is going on in your life or just that you are Ok. Weather you are a silent reader or every day participant, newbie or old member, in remission or active treatment, on FaceBook or different cancer website we will be happy to hear from you.

We Do Care

Love

New Flower

New Flower
Posts: 3996
Joined: Aug 2009

about me

Last Sunday I took a picture of pink algae and posted on my expression page

My recent scan  in October showed stable, my blood was drown yesterday and I got my treatment -Faslodex shot.

I have been very busy at work preparing for a presentation which went very well on last Tuesday. 

I have been overwhelmed by medical insurance enrollment process as I have to select a new medical insurance plan because my current one will be cancelled next year.

I am looking forward to Thanksgiving being off work spending time  with my husband and son, who is coming from San Francisco.

Happy Thanksgiving to everyone  

mjjones453
Posts: 125
Joined: May 2010

I am one that rarely posts, but thought I would check in.  I am close to my four year anniversary, which will be in February.  I will finish my fourth year on Tamoxifen in May  (I have always blamed any illness on tamoxifens side effects!). I have been doing well except for learning to deal with Adult onset asthma, and now I have herniated discs (which I can't blame on tamoxifen) in my back that I am consulting a surgeon about.  I visit the Oncologist every 6 months now, which is fine.  I have found that for myself, each day has gotten easier, since my breast cancer diagnosis, but I feel that it is still at the front of my mind. 

I have a very supportive husband, 2 grown boys married to 2 wonderful girls, and 3 grandchildren.  

Even though I don't post, I have been encouraged by many of you that have posted, and have prayed for those going through rough times!

Mary

lynn1950's picture
lynn1950
Posts: 2573
Joined: Jun 2008

Five years after treatment, I am busy working and holding new grandchildren.  Life is good.  My husband is planning on retiring in January.  That will be a big change for us. Looking forward to seeing how others are doing. Thanks for this strand, New Flower. xoxoxo Lynn

New Flower
Posts: 3996
Joined: Aug 2009

Lynn,

 glad to hear from you. Well 5 years is a great accomplishment and was not easy. 

hugs and stay in touch

mommaellen's picture
mommaellen
Posts: 188
Joined: Nov 2012

I am doing great.  I have a appointment with the oncologist in December for a check up.  I am spending Thanksgiving with my long time friend (38 years) and her family.  I am looking forward to Christmas this year.  I have my daughter and 6 year old grandson living with me and I cant wait to see his face on Christmas morning when Santa comes.  Also, my Stepmom and Stepbrother are coming for Christmas so it will be fun.  I hope everyone here has a great holiday.

 

Hugs,

 

Mommaellen

New Flower
Posts: 3996
Joined: Aug 2009

Glad to hear your good news. Happy to know that Jeffifer is recovering well

hugs

aisling8's picture
aisling8
Posts: 1265
Joined: Feb 2010

Thanks for this thread, New Flower.

I'm doing fine, now three years NED (yay!)

We bought a house last year. I work. I play with my grandchildren. I Zumba. I write and (sometimes) publish stories and poems. And I take pictures. 

Wishing each and every one of us a Happy Thanksgiving and lovely holidays.

xoxo

Victoria

 

SlowRollin's picture
SlowRollin
Posts: 75
Joined: Nov 2011

Still trying to find our way. My wife is 1 yr 6 mos into remission. Still doing reconstruction. Looking forward to spending our first Thanksgiving with the family since our world turned upside down in 2011. 

sbmly53
Posts: 1470
Joined: Jan 2010

I am 4 years out and doing well. While I don't post much anymore, I do check in to see how everyone is doing.

Sue

desertgirl947's picture
desertgirl947
Posts: 426
Joined: Oct 2012

I have been wondering how everybody is doing especially those who have not posted for a long time.

I occasionally comment on different posts, but I have not said too much about my current status in quite awhile.  I am now about 13 months past the time I finished rads and healed from the bit of burning I had.  That marked a significant end for me as I had had a double mastectomy, chemo, and then rads.  I started tamoxifen about 15 months ago and deal with some of its side effects.  Took awhile for some of those to exhibit themselves.

I am on the three-month plan with my oncologist.  I am on the six-month plan with my surgeon, and that may change in the comin g year.  January should be the last visit I will make to my radiation oncologist.

My hair grew back rather quickly.  It appears that it will continue to be straighter than it was -- I had thick, wavy hair.  The color is about the same.  It is softer, but it is still thick.

When I twist and turn, I do not feel as tight in the chest as I did for quite a few months after my surgery.

My left arm bothers me somewhat. [As it was, I had injured the shoulder when I was a younger adult -- I was playing volleyball and crashed into the wall, chasing the ball.  I put my arms up so that my head would not hit the wall hard.  I dislocated my shoulder.]  When I was doing rads, it was difficult for me to hold my arm in the position I needed to.  When I did the boosts, it was even more difficult and very uncomfortable.  I managed, though, because I was determined to finish.  My left arm was where I had lymph nodes taken.

I can do a lot of what I used to do; but there are a few things that I can't do OR are difficult.  I just accept it as part of what goes with battling the disease.  I feel that I am doing quite well.

New Flower
Posts: 3996
Joined: Aug 2009

Thank you all for taking time to respond.Lgad to hear that many have been dating NED. The good news you can share him with each other and nobody is jealous or upset.

Victoria, how come you never took a picture of us?

SlowRolin - good luck with reconstruction, hope everything will go smoothly

Sue - thank for staying and follow on everybody

Desergirl glad to hear about your recovery. It took me 12 months to recover from mastectomy, Chemo and radiation. I hope you feel stronger every day as time go by.

We all have our challenges moving forward and dealing with this disease.

 Chemo girls how are you doing, still waiting to hear from you as well as radiation graduates and many others. 

Tomorrow is a busy day for me, taking vacation for 3 medical appointments. 

Hugs

 

hope67's picture
hope67
Posts: 165
Joined: Apr 2013

New Flower, how nice of you to start this thread.

As I already posted, I am going in tomorrow for my second mastectomy. In my right breast I have a tissue expander and now I am getting one in my left, too. I can't wait to get them out in 3 months or so.

Otherwise, I think that I am doing fine. I am on Tamoxifen and I am not having many side effects (right now I have a yeast infection).

Sometimes I think that too many bad things happenned to our family (my sister BC, my father stomach cancer, my BC, and then sudden death of my mom, and all that in year and a half). But that's life, you have to accept what it gives you.

Carmen

disneyfan2008
Posts: 5340
Joined: Oct 2010

one year since 2nd lumpectomy (which wss ONLY scar tissue from first surgery) finished up my 5th year tamoxifen. ALL GOOD..Happy to say.

Denise

Annette 11
Posts: 379
Joined: Sep 2010

Hello everyone,

It's been 3yrs since my last chemo and I am feeling wonderful. I do check B/C site now and then so I guess I am a silent reader. Hopefully all have a good holiday.

Love,

Annette

CypressCynthia's picture
CypressCynthia
Posts: 3963
Joined: Oct 2009

I have had a rough year with liver mets back in March.  Currently NEAD (no evidence of active disease) and stable after taxotere, herceptin and perjeta.  Taxotere finished, but on the other 2 indefinitely.  Have run into osteonecrosis of jaw after ~5 years of xgeva, so had to stop xgeva.

But, I am stable and feeling better and off to Disney World next month.

Jean 0609's picture
Jean 0609
Posts: 2323
Joined: Jun 2010

 

I am doing ok.  I have a new grandson, Bradley, Jr. who is 2 weeks old today.  His older sister, Isabella is 3.  His foster sister is 15 months old.  They have had her since she was 3 weeks old.  They are hoping to adopt her.  My other son and daughter in law are expecting in March.  Our family is growing.

 

Olga, I am sorry you aren't coming east this year.  I would have loved to have met up with you again.  Maybe next year.  California is still on my bucket list.

 

xoxo,

Jean

 

smilingdeb's picture
smilingdeb
Posts: 50
Joined: May 2011

I have been in remission for 2 1/2 years now and had congrestive heart failure 1 year ago. I was on my death bed with my heart functioning at 10%. I had pneumonia with blood clots in both of my legs (now I have DVT), lungs and heart. The three in my heart, one of them was a size of a golf ball next to one of my valve. If it was to move and cover the valve I would have had a stroke, brain damage or died. The doctors said I was a miracle and a very strong warrior after learning about my breast cancer history. I was in the hospital for almost a month. When I got out I went stright to Card. rehab and now my heart is functioning at 45% (a normal heart is 75%) The heart cath. showed my heart was pumping good and strong and the veins looked good without any blockage. My Card. doctor does not think that my heart will get any stronger but that's okay cause I am still living. Please everyone, if you have any type of family medical history tell your doctor and make sure that any medication you are taking does not have any side effects that will make the problem worse or put your life in danger. Hope you all are doing great and getting ready for the holidays.

Take care and Bless you all,

Deb

P.S. What cause all this? The aggressive chemo treatment, I think they said radiation (I was heavy duty medicated) and anastrozole (arimidex)

CypressCynthia's picture
CypressCynthia
Posts: 3963
Joined: Oct 2009

Deb, you have had a really rough year and I hope you continue to be a tough warrior.  You are amazing.  Thank you so much for sharing your important story.

I have long encouraged all on the MB to be proactive about their hearts.  Duke University proposed a "multiple hit hypothesis" some years ago.  Basically, their hypothesis states that women after breast cancer are at increased cardiovascular risk from all of the treatments.  See: http://www.medscape.com/viewarticle/563432_2

Don't forget that breast cancer itself can increase risk!  In my case, in 2007, at age 54, I had a small heart attack.  At the time, I had undiagnosed bone and lung mets (long story) which had been going on for 2 years.  My cardiologist is convinced that my undiagnosed metastasis caused a hypercoagulable state.  Cancer can cause weird clotting issues and an unwanted clot can end up anywhere.  In my case the clot ended up lodged in a blood vessel in my heart. 

The cardiologist believes this weird clotting caused by cancer was my problem because 1) I had no cardiovascular risks (no diabetes, not overweight, no family history, etc.) 2) during cardiac cath he found that all of my coronary vessels were clear except the blocked one 3) the blocked vessel was a distal (far away) and small one.  See: http://www.healthline.com/galecontent/hypercoagulation-disorders

The day of my heart attack, I was very tired and short of breath.  I thought it was the heat.  Later that evening, I suddenly had every classic sign of a heart attack:  sudden crushing pain and pressure over the heart, pain radiating to the jaw and left arm, immediate nausea and vomiting, and denial.  Believe it or not, our daughter, a PA, had just told me that one of the symptoms of having a heart attack is denial and all I wanted to do was go to bed and forget about it!  I couldn't keep an aspirin down, but I chewed one and held it under my tongue hoping it would help (there are many blood vessels close to the skin under the tongue and many meds can be absorbed there).  I then made Danny call 911 and no one looking at me believed I was having a heart attack because of my age, my sex and my physical condition.  Everyone kept saying it was probably esophageal spasm and I kept saying, "that would be nice."  Anyway, the next morning, my cardiac enzymes shot up and I was told I had a heart attack and was going to cath.

Deb, I relate my story from time to time, because often we focus only on the cancer.  Heart disease is the #1 killer of women in the US and we have to take care of our hearts too!

Here are the symptoms of heart attack in women:

"Heart Attack Signs in Women

  1. Uncomfortable pressure, squeezing, fullness or pain in the center of your chest. It lasts more than a few minutes, or goes away and comes back.
  2. Pain or discomfort in one or both arms, the back, neck, jaw or stomach.
  3. Shortness of breath with or without chest discomfort.
  4. Other signs such as breaking out in a cold sweat, nausea or lightheadedness.
  5. As with men, women’s most common heart attack symptom is chest pain or discomfort. But women are somewhat more likely than men to experience some of the other common symptoms, particularly shortness of breath, nausea/vomiting and back or jaw pain.

If you have any of these signs, don’t wait more than five minutes before calling for help. Call 9-1-1 and get to a hospital right away."  http://www.heart.org/HEARTORG/Conditions/HeartAttack/WarningSignsofaHeartAttack/Heart-Attack-Symptoms-in-Women_UCM_436448_Article.jsp

 

"What Are the Symptoms of Heart Failure?

You may not have any symptoms of heart failure, or the symptoms may be mild to severe. Symptoms can be constant or can come and go. The symptoms can include:

  • Congested lungs. Fluid backup in the lungs can cause shortness of breath with exercise or difficulty breathing at rest or when lying flat in bed. Lung congestion can also cause a dry, hacking cough or wheezing.
  • Fluid and water retention. Less blood to your kidneys causes fluid and water retention, resulting in swollen ankles, legs, abdomen (called edema), and weight gain. Symptoms may cause an increased need to urinate during the night. Bloating in your stomach may cause a loss of appetite or nausea.
  • Dizziness, fatigue, and weakness. Less blood to your major organs and muscles makes you feel tired and weak. Less blood to the brain can cause dizziness or confusion.
  • Rapid or irregular heartbeats. The heart beats faster to pump enough blood to the body. This can cause a rapid or irregular heartbeat.

If you have heart failure, you may have one or all of these symptoms or you may have none of them. They may or may not indicate a weakened heart."

http://www.webmd.com/heart-disease/guide-heart-failure?page=2

Eleanor1's picture
Eleanor1
Posts: 68
Joined: Sep 2012

It' s been a year since the diagnosis, nine months since last chemo and six months since last rads...and I am doing great!!I finally went back to work and being a nurse who went through cancer, I now see myself in every patient I take care of... My hair grew back so fast but very curly. I also hurt my arm/shoulder where I had my rads and presently on phys. therapy. I got into depression for awhile but getting better everyday.i am just glad things are getting back to normal slowly but surely! I may not be able to go back to my old self completely but I am embracing the new me! 

 

 

camul's picture
camul
Posts: 2045
Joined: Dec 2010

I am thankful to be here. This has been a rough year. All treatment was stopped which makes it harder tonstay hopeful. Had a big mixup with medicare when my insurance through work went from primary to secondary. Extremely stressful to get one bill for 38k, then find out that my primary stopped covering herceptin, knowing that it was slowing the progression and wanting 17 months worth of treatments, chemo and scans, back, as I was her2 undetermined and they thought I was her2+. Then put on Adriamycin until Inended up with 3 embolisms in my lungs and I spent 5 nights in the hospital. This was when all treatment stopped, my body can not tolerate chemo, and Xgeva was stopped because of necrosis to the jaw.
Now I am on thyroid meds, Coumaden and pain meds. I still take vitamin d and b12 shots and potassium. I guess it was purely coincidental that all treatment stopped at the same time as medicare staryed. I wondered for a while when they even stoped Evista (the hormone blocker). I finished 10 days of radiation on my right knee and upper femu, then started 12 days of radiation to my thrasic spine, to try and stop the tumors from putting pressure on my spinal column which was causing weakness in my legs (so I dont end up paralyzed from the waist down).
I have a hard time with all of it at times and tire pretty easy, but I am so happy to be able to say that my medical team was wrong in their prognosis as far as a timeline.:)) Some days are better than others, but I am very happy to take as many as God is willing to give me!

New Flower
Posts: 3996
Joined: Aug 2009

thank you for sharing, we smile and cry together, amazing power of human spirit.

hugs 

GreeneyedGirl's picture
GreeneyedGirl
Posts: 1003
Joined: Sep 2008

Like many, I check in, but don't often post. But I am thinking of you all ~often. Praying for my sisters/brothers who are part of this family as I see your posts and challenges you face. My health is great, and I am greatful for that. Life keeps me busy with 5 grandkids~the newest is 4 mo. old, and a wedding in Dec. plus another grandbaby due in May. Part time work that gives me joy~ and appreciative of all I am blessed with. Enjoying that pretty little convertible that I get to drive everyday...even when the sun is not shining here in the gray NW. (it is sunny in my ♥ tho)

 

~M

Double Whammy's picture
Double Whammy
Posts: 2284
Joined: Jun 2010

I'm doing very well.  I've even made peace with my permanent hair loss from Taxotere.  It is what it is.  It has been 3 years since I completed treatments for breast cancer.  I also had endometrial cancer at the same time and that's doing great, too.  My follow up appointments are now at 6 months - I just have twice as many as most of you because of the 2 cancers.  Sigh.  My husband was just diagnosed with prostate cancer and will begin radiation after the first of the year.  I guess God likes to keep us on our toes.  But life is good here in Northern California.  Hope your holidays are filled with joy.

Suzanne

TraciInLA's picture
TraciInLA
Posts: 1839
Joined: Jul 2009

Suzanne, I was just thinking about you, and realizing it had been awhile since we'd heard from you.  I wish it was because you were just enjoying life and fall in Northern California....I'm so sorry to hear that you and your husband are dealing with a new diagnosis now.

Traci

SIROD's picture
SIROD
Posts: 2133
Joined: Jun 2010

Wishing your husband the best going through radiation.  You have had your plate full.

Best,

Doris

Grandma X 6
Posts: 120
Joined: Mar 2010

I am in remission. Dignosed Sept 2009, Stage 2, Her2, one year of treatment .For the most part I am a quite reader. It has been a tough year with all of are wonderful Sisters who have passed, May thay all rest in peace. My Holiday candles will all burn for them and thier Family this Holiday Season. Cry

 

teresa41's picture
teresa41
Posts: 453
Joined: Jun 2009

April 19,2014 will be 5 years since diagnosed the first time April 12 2014 will be 4 years since the second time ! I'm doing good I do check in here I   just don't post much! I wish everyone well and Happy Holidays !

SIROD's picture
SIROD
Posts: 2133
Joined: Jun 2010

I hope God gives you a lot of pain free days.

Best,

Doris

SIROD's picture
SIROD
Posts: 2133
Joined: Jun 2010

It's been a rough year with losing my father in the spring, my mother being diagnose with alzheimer's and then suffering a major stroke.  She now is 100% disable unable to do anything for herself and my sister who is there where my mother lives is is not well. She has heart disease and they found a mass in her thyroid.

Faslodex failed in a February ct scan showed all kinds of activity in my left lung.  It was the last of the hormonal drug therapies I've been on for 18 years.

 I began Taxol in February once a week for 4 weeks, 2 weeks off.  My first ct scan showed regression in the left lung and everywhere else in the right lung, the middle and etc.  I had developed two bleeding stomach ulcers and low iron.  My 2nd ct scan in August showed stable.  They also reduced the amount of chemo 3 times.  My last scan on Friday again showed stable and also the fact that I had small stones in my gallbladder.  

Doris

New Flower
Posts: 3996
Joined: Aug 2009

I really appriciate you taking time to update us. Even the life is not always roses we are family and need to share our pain and joy.   I am really sorry for the loss of family members all new disease and hardships among our members. I very happy to see new babies, life is returning back to normal and survivors enjoying thier lives.

 I am currentelly undergoing lymphedema treatment with wrapping , balancing lymphedema session with work. I do need to order new glove and custom sleeve hoping to get partial reimbursment from insurance.

Smiling Deb I am very sorry, i think Arimidex plaid role, please be careful

SUzanne very sorry for your husband cancer. Carol I  will PM you about isurance I know it is sucks. Doris my deepest condolenses, you tought me that stable is goo, and stones are treatable.

Please forgive me me if I  did not reply to you directely.

I am too deeply missing my pink sisters whom we lost this year.

Love you all

 

tasha_111's picture
tasha_111
Posts: 2042
Joined: Oct 2008

Sooooo the pain has finally gone away. On palliative care only now.  Sure sucks, but better than having the pain AND palliative care...Eh?  Always look on the bright side of life.. J xxxxxxx

Skeezie's picture
Skeezie
Posts: 583
Joined: Aug 2009

Like many others, I check in to see how everyone is and cry with the sad news of some but don't post much anymore.  I'm always glad to see the "old" familiar faces and ache with the so many new ones and know the pain and fear so well.  I feel very blessed....next month will be the 4th anniversary of my last chemo and so far, fingers crossed, so good.  In these 4 1/2 years since dx, mastectomy and chemo my life has returned to normal (tho you think it never will) and I actuially go more than a day without thinking about it.  Even tho I see the signs of the surgery daily, I have gotten used to it and don't think about it...idsn't that odd?  I have kept my port cause I have no veins to speak of and this makes it so much easier to get blood draws or iv's.

All of you were a lifeline and still are a wealth of information and support and love.  I always encourage "newbies" to take a peek at the site and hope it gives them the same things it gave me.  I'm very lucky I have a loving husband and great friends who through all of it were right there for me.  I wish you all great holidays, peace and comfort and most of all the best health that is possible.

Hugs Judy :-) 

   

fauxma's picture
fauxma
Posts: 3533
Joined: Dec 2008

Things are doing well here.

13 years NED for Unterine Cancer   5 years NED for breast cancer   Was 11 years NED for bladder cancer but had 2 recurrences in 2011 so 2 years NED   3 years NED for skin cancer   Had a small precancerous polyp removed from my colon this year.  I do all my check ups yearly in mid March and early April so those are busy months.  I do a gyn-onc visit, a urology visit for a cystoscopy, a dermatology visit, an oncology visit for the breast cancer, a mammo, and a gastro visit for a yearly colonoscopy and endoscopy.  Then I can await results in a short period of time and then relax for another year.  I thought about spreadiing them out but then I would be going every other month and awaiting results all the time.  I am not inclined to worry over the tests but getting them out of the way as close together is much better. 

My hubby has made good progress from his stroke in 2011 and his broken hip in 2012 and C Diff infection in 2012.  No hospitalization for over a year.  This news makes me the happiest.  He has always been my rock and there for me 100%.  I hated watching him go through all this.Worse for me than dealing with my issues.  I felt in control with my stuff but totally helpless with his.   I am sure that is how he felt watching me go through my stuff.  So we are actually each other's rocks.

This might all sound like a lot but only because it's all written together.  Each incident was separate and we handled them one at a time. I was actually very fortunate that my cancers were caught early and all of them have responded well to treatment.  And I had genetic testing that determined I have Lynch Syndrome and Muir Torre Syndrome so I have preventative testing done for cancers that are common with them. 

My kindest thoughts and prayers are with all on the board.  There are many that are having struggles with this disease and with other life issues and my heart goes out to them.   I also miss those that we have lost through the years.   Losing someone you care about is like a tear in a beautiful quilt, it can be mended but it never exactly the same but you treasure it all the more.

 Love to all   Stef

debi.18's picture
debi.18
Posts: 848
Joined: Jun 2011

Love this thread, thank you New Flower!  I rarely post but do check in every week or so to check in on everyone.  This group was a life saver for me when I was diagnosed in 2011.  Thankfully, today I'm still dancing with NED.  Smile

I went to the Hershey reunion this year and was honored to meet the ladies. We had tons of fun and memories I'll always treasure.  I was also lucky enough to meet a few of the California ladies last December (New Flower was one of them). 

My thoughts, prayers, love are with those struggling.   Stef, I absolutely love your quilt analogy!

Hugs and love to all!

Debi

 

 

 

carkris's picture
carkris
Posts: 4523
Joined: Aug 2009

I pop in from time to time, but when I find a question I can answer, someone has beat me to it. i am back to life it took me two years to recover, and then I had an accident at work in July. It was a pretty freak accident, where I fell and IV pumps fell on my head (about 40 pounds worth) I had hematomas and lacerations, a concussion and neck injuries, I was out of work for 3 months. I did go on a previouesly scheduled vacation and it was wonderful althogh I had to struggle through it a bit. But we are all used to working through things. I still am dealing with headaches, and memory issues like chemo brain wasnt enough haha, and have heard it can take at least  year. I find myself discouraged at times, and depressed but have heard that is part of it too.

   i went to Hershey and had a great time. I am sure with a group of survivors no one noticed my word finding issues bit of course that could have been the chocolate martini.

   It has been such a year of losing so many so special, but glad to hear that many are still fighting the good fight.  Oh yes i am on my 3rd year of tamoxifen.

  

eihtak
Posts: 840
Joined: Oct 2011

This was a nice thing to do, thank you! I only post occasionally, but read often. I am 1.5 years post treatment (double mastectomy) for a rare secretory carcinoma which was only found on a 1yr follow-up PET scan for Stage3b anal cancer. As of today I am doing well and have routine scans coming up next month. I went back to college last spring at 54yrs old. I am filled with encouragement and inspiration from the amazing people here, and my life is full of love and support from my family which joyfully includes 6 grandsons between 2 and 5 all within 1/2 hr from my home........I am truely blessed!

smalldoggroomer's picture
smalldoggroomer
Posts: 1181
Joined: May 2010

I'm still in remission and doing well I post from time to time but am very busy these days. I do read and try to  keep up with everyone as best I can. Looking forward to the Holidays and glad to be here for them.

Best wishes to all

Your all in my prayers everyday

Kay,

childofthestars's picture
childofthestars
Posts: 246
Joined: Jan 2011

Hi All

Thanks New Flower, this is a lovely thread :)

I'm doing well following my bilateral mastectomy & DIEP reconstruction on 12 October following dx with DCIS.  I'm healing really well, have nice pert boobies, flat tummy (no more mid-line hysterectomy scar) and am back at work.   Thankfully I don't need any further treatment following this surgery.

From an ovca perspective I have been NED since I finished chemo for stage 11c on Dec 8 2010 - wooohooo.

So all in all life is gooooooood.

Wishing all my 'over the pond' sisters a happy Thanksgiving and roll on Christmas :)

Hugs (())

Michelle

Barb A's picture
Barb A
Posts: 101
Joined: Jun 2009

Hello, thank you New Flower for asking! I check in here weekly to see how everyone is doing. I'm doing alright. Have had a couple of biopsies and an MRI which came out well. Although I still have a couple of areas I keep watch on. I joke with my onc that I should have a punch card for all the biopsies I've had to have. I get one more and the next one should be free!

The last year at work has been stressful, but I'm thankful I have my job. My step-son has been battling a drug problem, so that has added to the stress. I do my best to keep these situations in perspective and try to reduce the stress as much as I can. I was on committees for local Relay for Life and Making Strides Against Breast
Cancer, which were both fun and did very well. My step-daughter will be getting married in February, so I will gain a nine year old granddaughter! I'm very excited about that. My grandson will be eight next week and the two get along great.

For those new to the board, welcome. I wish we didn't have to "meet" this way, but this is a great place to be. Everyone has helped me through tough times, made me laugh and have made me feel important and loved. For those going through treatments, I wish you all the best.

My thoughts and prayers are with each and everyone one of you.

Barb A

elm3544's picture
elm3544
Posts: 745
Joined: Jul 2009

Hello everyone. Wow what a great post. I haven't been on here much lately. 

It's been over 4 years since my last chemo. I have since had full hysterectomy, polyps removed, 3 more biopsies. Radial scar removed from"good" side.  Just had my visit with the oncologist, still NED. My mammogram apt is Dec. 30. Doing well.

 

Bella Luna's picture
Bella Luna
Posts: 1571
Joined: Aug 2009

I do visit from time to time and post sometimes.  I am 4 years out and moving forward with life.  I work at an elementary school as an educational aide.  The kids keep it interesting and I love their honesty and their "in the moment" personalities!  It's never a dull moment!  My husband and daughter keep my life moving and shaking.  They complete my trio and I love being a part of their lives.

I think of you and wish one and all nothing but the best.

 

cahjah75's picture
cahjah75
Posts: 2623
Joined: Jun 2010

but that doesn't mean I don't care.  My heart aches for those we've lost this year and for those who are struggling with treatments and new dx.  I finished chemo almost 3 years ago.  February will be 3 years since finishing rads.  I still see onc every 4 months and so far all is good. Still NED!  I'm half way through my 5 years on Arimidex and seem to be handling it all right. 

I apologize for the old Hershey picture.  My husband and I went to Hershey last year and this year.  Met some new pink sisters and had a great time.  We are hoping to go to Niagra Falls next May and meet some more pink sisters.

My 7th grandchild was born in February.  My son has 4 and now my daughter has 3.  My husband and I are going to Disney for Christmas with my daughter and her family.  It will be my granddaughters first trip and they are 6 and 8. 

Wishing everyone a very nice Thanksgiving and Happy Holidays.

Char

New Flower
Posts: 3996
Joined: Aug 2009

It is nice to see old friends. and feels like we had Thanksgiving together.

My best wishes to all, please keep posting we need each other giving hope to newbies.

Love

Olga

SAvent's picture
SAvent
Posts: 51
Joined: Nov 2013

Im new to the site so I dont know any of you but this is my second year testing clean after being diagnosed IDC stage 4 in 2009.

I recently celebrated 1 year anniversary at a job I really enjoy, got engaged to my teen sweetheart on valentines day & back in school working on the Business degree I was pursuing before I got sick.  I look after my grandmother and volunteer at the local community center on my day off & go to church with my family whenever I can.
 I am a NetRadio DJ and co-owner of 2 stations. I am a "SecondLifer" also and enjoy spending time with my SL family.

Thanks to whoever put this site together. Its an awesome platform for people like us.

Good Luck to all still fighting!!

Christmas Girl's picture
Christmas Girl
Posts: 3644
Joined: Apr 2009

Doesn't surprise me, Olga - our sweet New Flower, that you would post a thread such as this one. Wink

Although I continue to maintain a 'presence' here - don't check in nor post nearly as often as years ago. Even so, I keep everyone close within my hopeful thoughts & prayers - and within my heart. Each & every day, always. Am glad to know your status is stable.

For me - it's now been over 10 years since my 1st DX, and more than 2 years since the 2nd. Am back to being closely 'watched' - with doctor appointments/tests every three months. Quite honestly, haven't yet regained my sense of 'inner balance' since DX #2. I am grateful for each day.

To all those facing serious & difficult challenges - sending extra hopeful thoughts & prayers your way.

Kind regards, Susan

sea60's picture
sea60
Posts: 2601
Joined: May 2010

This was so nice to post Olga. I have not had time to visit as often as I like so I enjoyed reading and catching up on you and everyone. I celebrated 8 years NED this past October. I'm still working full time (longer hours) and enjoying my family, friends and 2 precious grandboys. That keeps me BUSY!

I'll be getting a full cardio check up in January, just to make sure all is good. Texas weather had been cold, something we're not used to but at least I can wear coats and scarves...ha!

Looking forward to Christmas. God bless YOU and all. Keeping us all in prayer as always.

Love, peace, health and joy,

 

Sylvia (sea60)

New Flower
Posts: 3996
Joined: Aug 2009

Sylvia and Susan thanks.

we are having a very cold weather in California too. We were at Almost freezing poin today, some areas even had frost.

long hours at work and more demanding conditions - unfortunate outcome of this recession. 

hopefully we all will have holiday  time off to enjoy family and friends.

Looking forward to reading more updates

hugs

ppurdin's picture
ppurdin
Posts: 935
Joined: Jul 2009

I am a silent reader on here.i like to know how everyone is doing.As for me I been Cancer free for four years 5months now.I have had some surgerys that we're scary since but no Cancer.Thank God.I will always remember the kindness from the people on this web sight.I got my ornament today.I love doing this.Merry Christmas to everyone.God bless you.May you have a great Newyear.

Sunrae's picture
Sunrae
Posts: 808
Joined: Oct 2009

NewFlower,

What a sweet and caring sister you are, reaching out to all of us. I don't come here often because I have so many health issues and way too many doctors. This year I've been to hospitals 8 times, and no one seemed to know what my problem was. Finally I was diagnosed with atrial fibrillation and flutter and had a heart ablation in November. Still in and out of rythmn but hoping that the procedure will work and waiting for my heart to heal up. Since being diagnosed with bc in late 2009, masectomy, chemo, radiation took all of 2010, shingles came along in 2011, very painful, 3 stents in my heart in 2012, fell and ruptured cervical discs and had lot of physical therapy in 2012, have lymphdema treatment almost every year and had to have shots for tendonitis in wrist too (need surgery). Also have to contend with asthma and sinus infections, (am now on oxygen), my diabetes gets out of control and now have diabetic retinopathy in my eyes and glaucuma and have to have periodic laser surgery. Arimidex just about does me in but Femara was worse. I also have high BP, high cloresterol and fibromyalgia, don't sleep well and many other ailments that keep me from being very active.

I still have good days and appreciate every one of them. When my heart heals up I expect many more and look forward to being with my family and friends more. I have a good support group and a loving patient husband who takes good care of me. I've lost 4 family members in the past several months, between ages of 27 and 76. My next check-up with cancer dr is around middle of January.

I come here when I can and try to keep updated on everyone here. I sorrow at all we've lost here on this board and still hope that more is done in cancer research. My prayer is that sometime in the near future, cancer will be defeated and no one will have to go thru the treatments and suffering that most of us have been thru. I love you all and will try to come here more often. Hoping and prayng for a great 2014 for all of you and your families.

lizzie17
Posts: 528
Joined: Nov 2009

Thank you  for asking us to check in.  I just read this, and was feeling a little lonely this New Year's Eve.  Now, I am feeling uplifted!

I continue to have squamous cell carcinomas on my face and go in for a biopsy report this Friday.  My breast ultrasound will be repeated in February....that is the name of the test, but it is the tissue mainly under my arm,  since I had a double mastectomy !!??

Other than that, still working, still in my routines, and still getting used to new family traditions which include a new son-in-law! 

I  still keep you, my pink sisters, in my prayers.  Hugs to everyone!!

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