Nov 16, 2013 - 6:33 pm
My father was diagnosed with GBM almost 3 years ago. Yesterday we found out that in the last two months since his last MRi his tumor has spread and almost doubled. He had been on temozolmide the last year everyday low dose and yesterday we switched to Etoposide low dose every day.
The down side to all of this is that he has recently lost his ability to speak. He gets out a word or two and cannot communicate what he is thinking. Has anyone encountered this before? It's so hard to not know what to do to help. He is starting to see a speech therapist next week but not being able to talk to him about how he feels is heartbreaking. I just want to help him in any way i can.
ALso, does any one have any experience with Etoposide everyday low dose? Side effects? effectiveness?