Nov 16, 2013 - 11:14 am
Folks, I haven't posted much lately but I do lurk around the site often to see how everyone is doing and thought it's probably time for a quick update.
This week I had my 9 month scan. My MedOnc is of the belief that for the first year he wants to see scans every 3 months. After my next one in February we will move on to six month intervals. I'm please to say to this point everything is still NED.
Here are some interesting timeline items that may help folks that are in treatment or about to start as to what one person experienced (remember everyone is different in their healing times). My ability to eat and saliva output started to increase at around the six month mark. Still could not eat meat or bread and food would easily get stuck in my throat so every meal meant many glasses of water and took quite some time. At about 7 1/2 months I could consume enough calories from food that liquid nutrition (ensure) was no longer necessary. Now, it's like a light switch went off in just the last two weeks and I can eat virtually anything. Saliva is about 75% of original and I ate a MacDonald's QP with Cheese and a medium fry for the first time yesterday, I know crappy nutrition but I ate FRENCH FRIES!
So, the purpose of this post is to assure you folks that it does get better. I still have swelling, dry mouth at night is a challenge and there is still pain (about a 2-4) mostly at the main tumor site (SQ BOT Stage IV). The doc's all said I have about 3 months to go on that stuff but it's not much more that a bump in the road to handle. Have faith that you will get better. As all these amazing folks here that give us strength and support continually tell us, "take it one day at a time". And, the best piece of advice I ever got on this board, "don't borrow tomorrow's trouble today".
Live long and prosper :)