Nov 14, 2013 - 6:34 pm
My husband was diagnosed with MPNST of the sciatic nerve in 2009. He had a local recurrance in 2010. He then had surgery, radiation, and chemotherapy. At that time the chemo regimine was ifosfamide, doxorubicin, and mesna. This summer we were told the sarcoma had metastasized to his lungs with appx 10 nodules. We waited throughout the summer to check for growth and decided to have surgery. He had the surgery 9/23/13. We went for his follow up 11/10/13 and there is already more cancer. At least two 1 cm nodules. My husband starts a new chemotherapy regimine Monday of Gemcitabine and Docetaxel. I have read this is a palliative chemotherapy regimine. I am googling like crazy and trying to learn as much as possible. Also looking for clinical trials since we were told that this sarcoma once metastasized to the lungs only responds to chemotherapy 30% of the time. They will not do anymore surgery if he is not in some way responsive to this chemo regimine. The reasoning is that since it has been less than 8 weeks since the surgery and the cancer it back it would be like a "dog chasing it's tail". I have been brave and strong for so long and now I am finally in the frantic, oh no we are getting to a cross roads panic stage. He is 47 years old and determined to keep fighting even though this has been a non stop 4 years of devastating news. As long as he wants to fight I am going to fight hard with him and for me that means researching the hell out of this rare disease.
I am posting all this because I am hoping someone can tell me that this chemo works!! Can anyone give me any bit of info on this chemo or any other treatments they have had.