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Hairy Cell Leukemia in 45 year old woman

Posts: 272
Joined: Nov 2011

A dear friend was diagnosed with HCL a week ago and started chemo (2 kinds) on Monday. She's having daily chemo.  She'd been feeling bad for months and had a colonoscopy a few months ago because of feeling bloated all the time.  Now she knows it was an enlarged spleen and not something else.  She did have some pre cancerous colon polyps.

HCL is so rare to start with and very rare in women.  She didn't know there was more than one type until we did some research but she's reluctant to ask any questions.  

Any suggestions on what she should be asking?  Has anyone here had their spleen removed to help control this disease?  She was led to believe this was an easy cure but online it says 'not curable' just controlable. 




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