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Phil64 Update - surgery # 5 coming up...

Phil64's picture
Phil64
Posts: 389
Joined: Apr 2012

Talked to surgeon (Scott Regenbogen, M.D., M.P.H.) yesterday.  Surgery is scheduled for Monday 12/2/2013. I now need to meet with work to discuss time off.  So far this year I have had 48.5 days off in the past 12 months from work (chemo, scans, and a liver resection surgery last April).  We have a policy for no more than 90 days off in a rolling 12 month window.  If I exceed more than 90 days off in this 12 month window I think I need to go on disability and could end up losing my job.

This surgery will essentiallyl be the same as the last surgery albeit more complicated given that it is a second surgery (scar tissue).  Also, I have an increased chance of requiring a temporary colostopy but the good news is that there is still an excellent chance I'll be able to get by without a colostopy (spelling?).

Happy Friday to you all and THANK YOU for your advice and support. 

Sincerely,

Phil

 

**

 

Last I reported uptake on a PET scan. I underwent an ultrasound and biopsy. Today I learned the results. I have a cancerous tumor in the colon right by the sutures from my previous resection. I'll be talking with a surgeon at UMHS soon. There is a possibility that they might recommend radiation treatment as prep for surgery but my onc thinks that surgery may be the next step given the location of the tumor. So I may be in for another colon resection within a couple of weeks. 

No remission break for me yet.

feeling a little down.

Oh, it’s hard to learn the lesson,
As we pass beneath the rod,
That the sunshine and the shadow
Serve alike the will of God.
—Anon.

God Bless us all!

Phil

Annabelle41415's picture
Annabelle41415
Posts: 4119
Joined: Feb 2009

Sorry that you didn't get better news but the radiation can bring the tumor down to minimal tumor making it more operable and more successful.  I'm praying for the best outcome for you.

Kim

Hooley's picture
Hooley
Posts: 142
Joined: Aug 2012

Praying for u Phil.   Never forget He holds u in the palm of His hand....

lp1964's picture
lp1964
Posts: 752
Joined: Jun 2013

Don't know what you will decide, but I wish you the best of luck And I know everything will be all right.

With brotherly love,

Laz

janderson1964
Posts: 1348
Joined: Oct 2011

You will be fine. God be with you.

johnnybegood's picture
johnnybegood
Posts: 1121
Joined: Oct 2008

did not get better news but we just have to keep putting one foot in front of the other,and God will carry us thru....Godbless....johnnybegood

jen2012
Posts: 1132
Joined: Aug 2012

Prayers for you Phil...hoping this is the surgery that gets you to remission!

lp1964's picture
lp1964
Posts: 752
Joined: Jun 2013

it's recommended to take at least 800mg of Tagamet/Cimetidine a few days before and after surgery. It's over the counter and many studies and patients say that it may prevent the spreading of the tumor from the surgery.

Good luck Brother,

Laz

annalexandria's picture
annalexandria
Posts: 2034
Joined: Oct 2011

#5 did the trick for me.  I hope that this one will be your last battle with cancer too.  I would 2nd Laz's suggestion that you try the cimetidine.  I used that for one week before and one week after my last surgery, and although I have no way to know if it worked, it's one of those "can't hurt, might help" things, imo.

Hugs~AA

tachilders's picture
tachilders
Posts: 315
Joined: Jun 2012

Sorry to read this phil but be strong my friend. Best of luck with whatever they decide to do. 

Scubadan's picture
Scubadan
Posts: 72
Joined: May 2013

There's some inovative surgery going on in one of the hospitals over here in Arlington, Tx.  They cut down to expose the tumor then put the radiation beam right on the tumor.  Takes a few minutes to do what takes weeks of external radiation to do and also no harm to other tissues.

What ever path you take it's good they found it early.

Keep moving forward.    Dan

Phil64's picture
Phil64
Posts: 389
Joined: Apr 2012

Talked to surgeon (Scott Regenbogen, M.D., M.P.H.) yesterday. Surgery is scheduled for Monday 12/2/2013. I now need to meet with work to discuss time off. So far this year I have had 48.5 days off in the past 12 months from work (chemo, scans, and a liver resection surgery last April). We have a policy for no more than 90 days off in a rolling 12 month window. If I exceed more than 90 days off in this 12 month window I think I need to go on disability and could end up losing my job.

This surgery will essentiallyl be the same as the last surgery albeit more complicated given that it is a second surgery (scar tissue). Also, I have an increased chance of requiring a temporary colostopy but the good news is that there is still an excellent chance I'll be able to get by without a colostopy (spelling?).

Happy Friday to you all and THANK YOU for your advice and support.

Sincerely,

Phil

Lovekitties's picture
Lovekitties
Posts: 2827
Joined: Jan 2010

I understand about your concerns about work.  Does your company fall under the Family and Medical Leave Act?  If so you need to apply for it so you can get them to hold your job.  It is non-paid leave, but can keep your job for when you can return to work.

As for the colostomy, that is not a big deal...if temp or perm.  I have had one for over 3 1/2 years and after a training period to learn what supplies are best for you, it becomes just another daily thing to manage.

Sending prayers and all good wishes for a successful surgery and easy recovery.

Marie who loves kitties

jen2012
Posts: 1132
Joined: Aug 2012

Phil...good luck with the surgery. My husband also stresses about days missed, but there's nothing you can do about. Try to let that go and focus on getting well. Hard I know...

lp1964's picture
lp1964
Posts: 752
Joined: Jun 2013

I'm going trough the same thing. On extended family leave now. They would have very hard time letting you go while on disability, because they are affraid of a law suit which they would certainly lose. Hopefully you can avoid colostomy, but if not its not a big deal. 

The main thing here is your recovery. That s what matters and that's what you are gonna remember not the little details of lost days and stuff. 

Good luck and everything will be all right.

With brotherly love,

Laz

danker
Posts: 681
Joined: Apr 2012

Hope the upcomming surgery is a complete success with a speedy recovery!!

UncleBuddy
Posts: 419
Joined: Aug 2013

Phil, I was hoping to hear better news. Please try to stay positive and know that you are in my thoughts nad prayers.

Lin

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