Oct 31, 2013 - 3:45 pm
So I've been lurking here for quite a while reading many of your posts. Many have been very helpful. Thank you. Reason for finally posting is that I like many of you have allowed this to consume our lives. I was diagnosed with a 4CM stage 1 RCC on my left that was "encapsilated" and removed via radical on May 28th. it ended up being grade 4. Prognosis seems pretty good, at least as best as can be expected. Recently had my first scan. My surgeon who has always been very positive gave me the results that the scan was "clear" but did so with a serious tone, one of which I hadn't heard from him before but I left the office relived that I had a clear scan.
Fast forward a few weeks when I had follow up visit with my urologist to make sure that my right kidney is working well (trying to watch this one kidney I have left). due to a wait, the PA came in and while discussing some things, he advised me that the scans showed that I had lymph node slightly enlarged and that I had a "hyper dense cyst" in my right kidney... huh?.... He advisd that the doc could explain more once he came in. once there the doctor explained that I needed a different scan to better determine what it is. I of course peppered him with questions and he showed me the scan results and highlighted the part that's said "could be hyper dense cyst" which he said isn't worrisome But that we need to watch it and scan it again.
a few questions for you folks...
1. Why wouldn't my surgeon made me aware (called him and asked for clarity, said it was classified as a bosniak 2 and following up with a tri phase scan in December)
2. Is it normal for a doctor to filter this type of info. how concerned should I be?
3. Has anyone had this type of scenario happen to them?
Pretty Freaked out