CSN Login
Members Online: 16

osteopoikilasis

patricia g
Posts: 2
Joined: Apr 2013

I orginally was told that I had stage 4 lung cancer, a c.t. scan showed that the cancer had spread to my spine, ribs, and all my bones.  I have recently founmd out that I do not have stage 4 but rather stage 3.  What they thought was cancer in mybones, etc. was a rare genetic dease called "osteopoikilasis".  It show up on a scan as it glows and has

uptake just like cancer.  If anyone need information let me know. 

patricia g
Posts: 2
Joined: Apr 2013

It does nothing to you and it does not need to be treated.

z's picture
z
Posts: 1249
Joined: May 2009

I am so glad your drs found out that its not stage IV.  It looks like from what you wrote there is no treatment is necessary for the osteopoikilasis.  I hope that you will have treatment to get rid of the stage III cancer.  I wish you well, Lori

Carlee
Posts: 100
Joined: Jul 2013

Very happy that you are not stage iv.  What treatment are you having?  Good luck to you!

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network