Oct 28, 2013 - 8:50 pm
i have successfully completed 6 rounds of rchop for stage lV dlbcl nhl and am in remission. My oncologist wants me to have radiation treatment to lessen the chance of reoccurrence. I have a consultation with an oncology radiologist tomorrow and am wondring if anyone has suggestions as to what I should be asking during this meeting? Has anyone had / or declined radiation treatment (or know of someone who has) and regretted the decision to do so? It's my understanding that radiation treatment has greatly improved over the years and the exposure is less and more accurate. I have seen posts on other boards about the long term effects but it seems like their treatment was many years ago. I am trying to calm my fears and make an informed decision. Sharing your experience / knowledge / concerns / advise regarding this would be greatly appreciated. Many thanks. Toni.
PS: my brother found this support group and told me about it last night...wish I had found it 6 months ago when I was first diagnosed. Don't get me wrong...my family and friends have been very supportive, but it would have been nice to talk to someone who really knows what you are going through.