Oct 27, 2013 - 5:20 pm
My name is Katie and I am 23 years old. After having headaches for months my doctor ordered a mri in July and he called me the next morning and said something came up on the mri and he got me a appointment with a local neurology doctor. Well he told my husband, my mom n law and I that it was a tumor but hasnt seen one like mine in his whole career and told me to go to a neuro oncology doctor 4 hours away he said they are the best doctors to go to. So I went and they met with there team of doctors and reviewed my case and said the type of tumor I have in my brainstem is a glioma and I start radiation treatments very soon. Its a low grade glioma but Ive been having pain In my right arm ,elbow ,wrist, fingers, and weakness in my arm and weakness in my right leg so since its low grade Im just going to do the radiation treatment without chemo and hope it shrinks the tumor. Would like some advice or anybody to talk to who has the same thing, that would be great.