Oct 22, 2013 - 5:56 am
Hello everyone, i posted on Oct. 8th about new developments in my ongoing fight with the after effects of " esophagectemy" . I thought i was well on the road to being cancer free. three and a half yrs and was doing great. Now i'm having problems..the posting i had on about my neck was minor compared to this.
I don't show it to others ..but i'm starting to feel really afraid of what the tests will show and i feel the changes in my body..subtle changes ..but they are there. I'm seeing my doctor today about the results of bloodwork i had done..which i had requested since i hadn't had a full blood work up since May of 2011.
After reading all the postings on here i came to the realization i wasn't being as well cared for as i should have been. I had my surgery in a small local hospital and the surgeon had a very good reputation, but i was shell shocked and didn't ask a lot of questions. it was a miracle i survived I found out recently there had only been a few of these surgeries done before me. Before that they were sent to a major city 5 hrs away. Rumour has it i was the first one to survive in my local hospital.
The surgeon who performed the operation has moved and my surgeon now has given me more info than i needed to know...apparentely when he operated ..the way he connected the point at the junction is to put it bluntly weird. my doctor asked if i was losing weight or had food coming back up. I do sometimes. If this happens on a reg basis they would have to operate again and this surgeon now said he wouldn't touch it. I'm so stressed about this ..along with the MRi looking for tumors in my brain..i just can' think straight.
Sorry for the long rambling letter..thanks for being there