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petscan result and bloods from yesterday

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

clear peritoneum, liver and pelvis, only active disease lungs two small stable spots, see blog.

one year since removab worked so well for me.

still ketogenic and qigong and supplements.

I am overjoyed and grateful, back to Germany for more treatments focusing lung spots, feeling very well.

 

pm me if you are interested German treatments

lp1964's picture
lp1964
Posts: 852
Joined: Jun 2013

ithioseThisose had my rectal surgery last Tuesday and feeling good too. 

What the plan for those lung spots?

Laz

janderson1964's picture
janderson1964
Posts: 1565
Joined: Oct 2011

That's awesome Pete

very worried husband
Posts: 86
Joined: Feb 2011

Awesome news.. Keep the good news coming Pete. I love these... Best of Luck

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

thanks for the kindness, the baseline Cea reflects small residual lung disease, 

doing a 9 day qigong course, blowing away lung mets using qigong the next therapy starting 24 hours almost, time will tell.

restarting raw liver smoothies to boost iron, red cells, known side effect metformin.

when to go back Germany and what to do on the drawing board.

open to conventional therapies to target lung mets.

I have been home Sydney 2 months away from alt treatments besides dca, gcmaf artemisonin, supplements.

so far the cancer is retreating and my quality of life great except another infected chemo port and burst ear drum.

 

I am very very grateful for each day and I have found my way through this challenge so far

danker
Posts: 735
Joined: Apr 2012

Have read with interest your persual of NED  without standard treatment.  Glad you have been so successful and hope you continue to beat it all  Good Luck !!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

the few spots mean i miss the ned prize, better the devil we know!

danker
Posts: 735
Joined: Apr 2012

Have read with interest your persual of NED  without standard treatment.  Glad you have been so successful and hope you continue to beat it all  Good Luck !!

Annabelle41415's picture
Annabelle41415
Posts: 4231
Joined: Feb 2009

That is good news.  Thank you for the update.

Kim

tachilders's picture
tachilders
Posts: 315
Joined: Jun 2012

Great news pete. Sounds like you have found both effective treatments and peace with using both conventional and non-standard treatments. Wishing you only the best. Any word from Peter menses?  Haven't spoken to him in awhile and thought you might have been in contact more recently. Unfortunately, ren doesn't seem to be having your level of success, nor did I. I'm doing ok and staying stable so far on folfiri plus avastin, but the fatigue from irinotecan has been constant and severe. The septic infection took me down and the irinotecan is keeping me there. I've been on leave since September 5 but am supposed to return to work November 4, we will see if that happens. My boss is really great so maybe I can work from home for awhile as an option. Take care and best of luck to you with the future treatments. 

tedd

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

i got a nasty blood infection, then bust an ear drum also, its a small world, it also took me a month to get over a weeks iv antibiotics the nasty stuff.

i am super sensity low dose xeloda whic wiped my immune system and then i also got infections.

peter menzies and i had lunch yesterday, before i head to germany, he is pretty well, only got lung mets, vogel and removab helped him a little, he is on folfiri avastin and in good spirits. he is interested in my lung met ideas, we have similar disease profiles now.

glad your boss is kind, if you get a chance do your high resolution hla subtypes a and b, i got my results today and they predict my success retrospectively and they give me hope going forward on this last little exercise. about 2/3 cancer patients are respoders i think, this is using doc nesslehut p2x7 priming agents.

i will test out nesslehut on remaining lung mets, before getting seriously adventuruos with prof rolle lazer stuff. maybe vogel can do the lungs. a few options.

best of luck to you with you treatments, it was nice meeting you and of course ren at hallwang. i wish you guys were not so advanced, alas.

pete

 

Fucc
Posts: 84
Joined: Sep 2012

Hi Pete,

 

I am glad to hear you are feeling well. What is the plan for your lung spots? I am currently trying to decide what to do about mine. Have you had lung issues before?

Carm

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

live joyfully and see if another lung targetted vaccine with leukine might help, stay on ketogenic diet and supplements and then explore therapy reponse

karguy's picture
karguy
Posts: 1024
Joined: Apr 2009

That's great news,I hope everything contiues to go well.Good luck.

annalexandria's picture
annalexandria
Posts: 2193
Joined: Oct 2011

hope the lung spots are soon gone as well.

AA

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

Great news!

Kathleen808's picture
Kathleen808
Posts: 2300
Joined: Jan 2009

Pete,

You are awesome for checking in with your very good news!   So fabulous!   Keep going my friend!

 

Aloha,

Kathleen

Nana b's picture
Nana b
Posts: 2844
Joined: May 2009

Keep on moving forward! 

 

Aufweidensein 

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

not sure what or why, but fighting on, see blog if your interested.

tanstaafl's picture
tanstaafl
Posts: 956
Joined: Oct 2010

which labs for which cea numbers?  Also if you could show your ESR and/or hsCRP values with the CEA/CA199, that might make it easier to add some windage or range width for inflammation changes.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

seeing alternative doctor first thing tomorrow for vit c and strategy, all the other numbers may help indicate die off or recurrence, either way the next german vaccine is booked for around 16th november, so its about 10 weeks since the last vaccine, i will likely do a tace before and after vaccine with some hallwang infusions for the day, i will try and get doctor herr my german pett guru to review the ct and the pet. plenty to do in a month and to get back for xmas.

erring on the aggressive side for these potential recurrences, again this might be a response to heavy duty artemisinin, or even a vaccine effect. lst vaccine only about 10 weeks ago. I am really praying this is a synergy between the dendritic cell vaccine and the artemisinin

my new slogan

"live peacefully, treat aggressively"

if this is a recurrence its interesting that I have had latest high res ct reviewed at the big radiologists review meeting only monday 8am, i took the dvd to the meeting myself

these same images were reviewed by my personal radiologist a few days earlier with nothing found, likewise similar results from the pet only a week before,

so the clarity and the effectiveness of the scans in the light of the cea rise is telling the same old story, generally conventional will not treat based cea alone, i have started treatments as soon as the rise came in. hoping for the best, treating for the worst. the treatments are not toxic, they are a little costly but far more affordable than germany

trying to sort this little rise out in sydney, rather than running back to germany, but fly i will, if i have to.

I wish i had another marker to go by.

such a quick large jump, really just over 2 weeks, gies me hope its really die off.

if it is a recurrence in the same spot, I will line up alps like ren was looking at, I can also check out the latest lung met technique with doctor role.

I will put down the bloods when i get them, tans, we got to love the 2 weekly cea results.

I use different labs and adjust for the baseline so the government pays the blood tests.

so over two monthhs of low cea and clear scans, got to love this crazy illness, keeps me on my toes.

Its freezing in germany and so warm and pleasant in sydney is whre i would like to stay.

 

 

 

 

 

 

 

 

very worried husband
Posts: 86
Joined: Feb 2011

Don't know what to say.. 

Scubadan (not verified)

Sorry about the CEA spike.  Cancer: The gift that keeps on giving.

So many alternative treatments out there, I have to admit that I'm at a stage of advancement with my last CEA at 250 and new mets, that I feel experimenting with alternative tx would be a gamble I can't afford. I realize that moving to still unproven phase 1 & phase 2 trials is a risk, but at least there is reliable scientific evidence that targeting genomes and genes in the cancer cells is the best way to kill them all instead of subduing them with conventional therapies that a few people respond very well to. Fact remains that everyone's cancer is a little different in one gene or another and that's the reason we all get different responses to chemos and alternative therapies.

If one of these trials works for me I'll be expecting you to help my wife and I decide which sections of the barrier reef are best to dive. It'll take a year or so for us to reach the financial part of the big trip from Texas, but it's something we've been counting on as a bucket list mark-off.  She is very healthy and we're both master divers with experiencies in many adverse water conditions. Of course we prefer clear vis and mild currents and lots of fish.

Hoping you do well in your current challenge.  Dan

Kathleen808's picture
Kathleen808
Posts: 2300
Joined: Jan 2009

Thinking of you Pete. Thanks for sharing.  I pray you get a good plan and keep cancer dodown aloha,

kathleen

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

2013-11-07

 

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

these were treated a few days ago, its interesting how a clear pet and ct a few weeks ago, then a cea spike, now confirmed treatable disease.

sometimes these recurrences comeback with a vengence, doing another tace in 2 weeks.

got another split vaccine injection due next wednesday.

started low dose xeloda 500mg for a week, so i am not as holistic as i used to be, but i am pragmatic.

a few other colorectal friends are doing well with these therapies.

a longer remission would have been nice, but i think i have learned what is ending my remissions, seeing what the doctors think. 

I have been obsessed about many things, but the trigger of recurrence in the microtumour environment, well thats whats preoccupied my time.

I am feeling fine, and very grateful to have these treatment options that are working for me.

janderson1964's picture
janderson1964
Posts: 1565
Joined: Oct 2011

So what do you think is triggering these recurrences.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

recurrence 1 maleria 4 weeks later cea 5 on 27 nov 2011

recurrence 2 port infection 4 weeks later cea 23 on april 2013

recurrence 3 port infection/inner ear infection burst drum 4 weeks later cea 21 3 november 2013

suspect bacterial infection disables innate immune system and that tams move in and produce proangiogenic factors etc etc

also considering any and all immunosuppressive factors ie stress, lack of sleep, nutrient deficiency, these occured in last few weeks before recurrence.

also considering risk of falling out of ketosis.

anyway we are treating the cea rise and likely rise from liver and lymph nodes.

anything worth doing, takes effort and focus, and if at first you dont success try try again. 

still dreaming of long term remission based on diet and immunotherapies

sharpy102's picture
sharpy102
Posts: 338
Joined: Apr 2009

Hi Pete:

 

So I did not notice this thread until just got notified today about it. I was all happy reading your previous post (back from January) and now that they brought this to my attention I am a bit more sad, not pessimistic. Just sad to hear that it is not going as well for you as in your previous post. I hope you'll bounce back soon though! We need your strong will of fighting this beast! I wish you the very best, and hopefully you can eventually get rid of this monster!!! Please take care of yourself!!!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

doing my best, I am very grateful for my present health and the opportunities before me.

its the smallest, earliest recurrence likely ever detected, if it responds like my previous 9 taces well here comes another hopefully longer remission.

I will take care of myself with the help of my doctors and friends.

 

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