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BMX went well, but drains in after 18 days

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

I am 18 days post op.  Incision still tender, but not bad.  Drains are still in.  PS said I could get them out when less than 10 ml per drain per day.  I am still getting avg 25  per day.

Any one else have this issue?  I see PS again this Thurs and I really want them OUT, but I feel like I'm not healing inside.

Sandy

sandra4611's picture
sandra4611
Posts: 121
Joined: Sep 2013

I know you can't wait to get rid of the drain. Your doctor is being careful. Mine insisted on less than 20cc's for three consequetive days and my body would get to two days, then put out a bunch on day three. It was so frustrating but I knew it was for my own good. The last drain finally came out at 21 days so I feel your pain! When you read other's stories, you see how different doctors are. Some take drains out quickly, others take them out even though the drain is still cranking out much more than yours or mine. Keep the faith...the drain WILL come out soon.

hope67's picture
hope67
Posts: 169
Joined: Apr 2013

It seems that doctors have very different approaches. My drains came out on day 5 when I left the hospital. I had about 30 ml per day and he took them out. I had no problems after that, no excessive fluids and it healed perfect.

Carmen

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

I want to be safe and I have faith in my doctor.  I am very impatient with my body.  I'm glad to hear I'm not the only one with a body that takes it's dear sweet time.

Sandy

sandra4611's picture
sandra4611
Posts: 121
Joined: Sep 2013

Sandy,

I agree with your point of view. It comes down to, "Do you trust your doctor or not?" When you read such different ways of handling what appears to be the same situation, it makes you wonder if your doctor was "right" or was the other person's doctor "right." Could be that both are right. There are so many variables and each of our bodies are unique. It's unlikely a doctor is purposely doing something that he knows is "wrong." Malpractice lawsuits are too prevalent in this country for a doctor to disreguard a patient's welfare or do something that differs radically from standard U.S. practice.  

Unless that little voice inside starts to tell me something is wrong, I choose to believe my doctor is doing the best thing for me at this point in my treatment. That doesn't mean I blindly follow everything with no questions. No indeed. Each time I see him I have questions about something I've read about. I want to be a participant in this cancer journey and to learn as much as I can, but I have no problem speaking up if something is puzzling. I will also have no problem looking for another doctor even at this stage of the game if I have reason not to trust my doctor in the future.

 

Rague
Posts: 3388
Joined: Aug 2009

While dealing with drains can be a 'bother' - dealing with the effects when they are out too soon is much worse.  It's called a seroma.

My first drain was removed 2 weeks post with no SEs.  My 2nd draim was removed 4 weeks post.  Problems started then and were still showing on CAT5 mths later.  Of course you want then gone but i

t getting them out in a hurry can be "jumping out of the pan into the fire" .

Winyan - ThemPower Within

Susan

sandra4611's picture
sandra4611
Posts: 121
Joined: Sep 2013

Love how you put it. It's so hard to be patient even when you know those drains are giving all that fluid a way out so you don't develop a seroma or an infection. Drains are the friends we love to hate.

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

I've been staying quiet and still as possible today in the hopes that the totals would improve and the drains could come ou tomorrow.  Not so sure anymore.  I just checked and there is at least 25 ml in each and my regular measuring time is still 3 hrs away.  Looks like we will be close friends for a while longer.

Anyone one have suggestions to reduce drain pain when moving?

Sandy

sandra4611's picture
sandra4611
Posts: 121
Joined: Sep 2013

How do you support your drains? Many hospitals put you in a soft bra with pockets attached for the drain bulbs. If you aren't wearing the bra anymore, there are lots of ways to support the bulb and tubing so the drain doesn't pull against the suture site. I used several methods. You can use dental floss to make a LONG loop around your neck and attach the bulbs with safety pins. You can do the same thing with a long piece of flat wide elastic. (It's a little more comfortable than the dental floss for some people.) You can make your own pockets for the bulbs. Take a pair or two of socks, cut off about three or four inches from the toes and you have pockets that will hold drain bulbs. That way you don't have to unpin the drain itself, just take it out of the pocket to empty.  If you can find some baby diaper pins, they are perfect for pining and unpining the drains. The tiny thin ones are harder to deal with. I also bought some summer bandeau tops that were like comfortable strapless bras. I pinned the drains to them sometimes. Also been known to put the bulbs in my jeans pockets and tubing in my underwear.

While they are always uncomfortable, they shouldn't hurt when you move unless something is pulling on the skin where the suture is. Do you wear a bra? Does it press on the suture or rub against it? How long is the tubing from your skin to the bulb? Usually it is very long, could be down to your thighs and can get hung up sometimes so the tubing pulls against the suture. Do you hold onto the tubing next to the suture while you are "milking" the drain? If not, it's easy to pull on the suture.

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

I purchased vests with drain pockets before surgery. Arthritis makes safety pins difficult.  I use the 2 handed approach to milking the drains so I won't pull on them

At first I put only the drain and no tubing into the pocket.  Many times in the bathroom I would pull on pants and drain.  It didn't take long to find a solution.

The pain is not just in the drain but across my . . . . non-breasts.  It may be part of the healing, drying and tightening of the tissue.  I'll check with doctor tomorrow.

Thanks,

Sandy

Rague
Posts: 3388
Joined: Aug 2009

I had no pain with moving and I was  very  active.  I rode my horses with no problem.  I used a bandage pin (humongous safety pin used with bandaging horses) to hook the drains to my jeans belt loop.  Worked great as it was cold at the time and I always have a big/floppy sweat shirt on so it covered 'it'. 

muffingranma
Posts: 107
Joined: Sep 2012

I had so much trouble with my drains. I had my mastectomy the first part of November 2012 He took my drains out the last of November I think it was a big mistake , him taking the drains out. I kept filling up with fluid I had to go back one a week sometimes every other week, so he could take a tube and needle and go around in my chest area and draw fluid off until around March 2013 when I started radiation. After radiation the fluid became thick and I  was getting damage from the draining it couldn't be done anymore. It hurts a lot in that area. So unlike you I wish they would have left the drain in another month as long as any fluid was coming out. That was just my experience, yours could be different I pray and hope all goes well with whatever your journey is.

VickiSam's picture
VickiSam
Posts: 8507
Joined: Aug 2009

How you doing,- any updates?   Drains out --

 

Vicki Sam

VickiSam's picture
VickiSam
Posts: 8507
Joined: Aug 2009

sorry about the multiple posts!

Vicki Sam

VickiSam's picture
VickiSam
Posts: 8507
Joined: Aug 2009

How you doing,- any updates?   Drains out --

 

Vicki Sam

VickiSam's picture
VickiSam
Posts: 8507
Joined: Aug 2009

How you doing,- any updates?   Drains out --

 

Vicki Sam

VickiSam's picture
VickiSam
Posts: 8507
Joined: Aug 2009

How you doing,- any updates?   Drains out --

 

Vicki Sam

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

First drain came out last Thursday and hoped last one would come out today, but drainage still too heavy.  From what I've read here I'm lucky PS is letting me keep it in.

Now looks like Halloween to take out drain and get first installment into my expanders.  Sounds like a good day for a freak show.

Sorry, been kind of down lately.  Having trouble bouncing back.

Sandy

VickiSam's picture
VickiSam
Posts: 8507
Joined: Aug 2009

to grasp all our poor bodies have been thru  .. in a few months you feel a little better as our bodies change, breast become more visible.  My thoughts and prayers are with you, Sandy.

Keep up the faith, and never give up.

Strength, Courage and HOPE for a Cure.

Vicki Sam

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