Oct 03, 2013 - 6:54 pm
Hey there warriors!
Well I definitely need to apologize for not getting on these boards for quite a while. I'm the first to blast someone in my situation to realize everyone worries and come back and let the warriors know what's happending.
Don't quite remember where I left off from my post a while back, but yes it's cancer. The biggie on the PET was the supraclavicular node on left of collar bone...same one RO endured in one of her past recurrences. Then 2 smaller ones in abdominal area and one node in chest. No where else. thank God!!! Met with the oncologist on a Friday and by last Thursday 9/26 I had my first infusion. Similar protocol..carboplatin and taxotere. Taxotere is the cousin of the first one used, taxol. As usual I had the nausea type symptoms and just fought to take the meds to help. Once I did I was a little better, but just fatigued. I took good care of myself with lots of naps, let others wait on me and basically, was a person letting everyone wait on ME,,,..for once!!
Doc wanted to do radiation on the neck node, but after conferring with the head of the radiology dept, they suggested otherwise. An area close to the jugular vein and lots of nerves. Wiped that one off the list, but at the moment for sure 6 infusions, depending on my blood counts possibly add one or two more....argh! Rather get it all over with now and continue on with my life as this journey is such a disruption.
As well adding another specialist to my mix, naturopathic oncologist. This is a gal whom has been touted strongly by a few others on uterine and OVC side of our site. I'll meet with her early November at a reteat and continue on with constant communication via. phone or email, as well do lots of blood work. Nice fit to the medical side, but this is the specialist I should have gone with at the beginning of this crazy mess way back in '09. Better late then never! I'm anxious to get my terrain strong to keep this ugly devil away FOREVER. No guarantee, but worth a good shot and as well, I've always been a believer in keeping the body strong to fight disease, and I don't mean loading our bodies with meds.
Lastly, the best of all, my 21 yr old college daughter shaved her head in support of me. Britt told me, WE'RE GOING TO KICK CANCER'S ASS....YOU AND ME MOM!!! I was shocked when I saw the pictures, but after speaking with her friends I realized she's with me all the way. In support of her, I didn't quite shave my head, but cut it very short. Boy don't we look like the wild women!!! Gathering up the wig, scarves and BB caps, and ready to go with "baldy" in another week.
One thing about this 2nd time, I'm having a tough time coming to grips with idea yes it's back. So.,..I've been sorta clustering myself close to my family and just not wanting to talk about the subject at hand. Could be denial, but I'm finally coming to grips with where I'm going. Finally the fighter Jan has come back and I'm ready to continue on and enjoy life.
Appreciate everyone's support and know I'll keep you more updated on things...just some times we need a break to think thru life.
ENJOY LIFE, IT HAS AN EXPIRATION!!!
Super big hugs to everyone~