Sep 28, 2013 - 4:33 am
Hi everyone. I've been reading the posts and have decided to join for some advice from fellow travelers. At 41, (17 years ago) I was diagnosed with triple negative, Her2neu negative, stage 2 invasive breast cancer. I had a lumpectomy followed by 6 rounds of CMF and 35 radiation treatments. I went straight into menopause after first chemo so I erroneously thought I never had to worry about the ovaries causing a problem. I was wrong because on May 31 this year I was diagnosed with stage 3c ovarian cancer. A total hysterectomy was performed, plus appendix, plus cervix, plus a section of small intestines was removed. CA125 was 2680 but dropped to 13.8 after surgery. I decided on the dose dense chemo- half way through with nine left.
Due to age at breast cancer diagnosis and triple neg status, oncologists suggested BRCA test. He said that I would have automatically been tested if I had that diagnosis today. Well, my results show a "deleterious mutation" on both BRCA1 and BRCA2. He recommends a bilateral prophylactic mastectomy. I asked him if he were going to cure the ovarian cancer because it would be a wasted effort otherwise and he said yes. I have made an appointment with my breast cancer surgeon to discuss this.
I don't know what to think except I'm tired of not feeling well - surgery to chem to surgery sounds daunting to say the least. My husband thinks I should take some months off after chemo (ends two days before Thanksgiving), feel well for a while and then have surgery. I'm not sure I could emotionally cope with beginning to feel well again all the while knowing the surgery was looming over me.
I would appreciate any insight that you would be willing to share.