Sep 28, 2013 - 2:52 am
I am new on this board. My dad was DX in July '13 with stage IIB EC. It is apparently not opperable due to its location near the vocal cords. He has just completed 2 rounds of chemo (Cisplatin and 5-FU) and about 5 weeks of radiation. He has been completely flat out in the hospital since about a week after his last chemo treatment. He does have a feeding tube which he started early as the radiation ulcerated his throat early on an he had major Thrush so he couldn't eat at all. His stomache is a complete mess anyway. I guess he now has ulcerations from the chemo so his stomache isn't even digesting the feeding tube meals. His stomache gets so distented and makes super loud sounds. He has pretty much been on morphine, although they started to take him off a few days ago. As of today supposedly he was off of it. He is so confused and doesn't even know where he is etc...is this normal to be this much of a mess after this treatment? They never mentioned he would be so sick he would be in the hospital for weeks. They mentioned he will be weak , not be able to eat etc...But being at home was what they figured. His blood work has been really good over all. The good news is they did an endoscopy the other night to check on the stomach stuff. They said his tumor was gone :-) of course I know that doesn't mean the cancer is gone...but atleast maybe it has set it back some. (still praying for NED) I know my dad and he will never put himself through this again. This was a one shot deal. It is so sad...my dad has never missed a day of work that I can remember, nor has he ever been quiet. It has been so horrible to see him sleep all the time and not be able to say anything coherent. His voice is coming back a bit now, but he is not making any sense really. Have others experienced this from the treatment. If so....how long will it take for him to get back to himself. Will he ever be himself again? We are also doing some alternative therapies and will get super aggressive with them as soon as he is able. We were juicing, alkaline diet, ozone water...
regarding diagnosis...crazy! He was feeling weakness in his body, naseau "dizziness" type symptoms. This was in early May. He went to ER and spend about 5 days in the hospital and they couldn't really find anything wrong with him. Did EVERY test but a endoscope. Looked for stroke, heart issues, lung, diabetes etc...his heart rate declined once during the night. One doctor said he needed a pacemaker. Had him on the board for it, another doctor said no he didn't need it. Needless to say he didnt' get it (thankfully) His diagnosis after 5 days in the hospital DEPRESSION/ANXIETY. Yep...suddenly my dad at 72 was having panic attacks. I kept pressing him that it isnt' adding up. The meds they kept putting him on made him a mess, his voice started to get really weak (that was just anxiety though). My dad finally said he was going crazy...he could not live like this and felt somewhat suicidal (love those antidepressants). Checked himself into a pych ward and the Dr. on staff immediately said he was not in the right place. Called a GI doc up from another floor (due to the weak voice) and had endoscope the next day. God only knows how long this could have went on....
Thanks for listening!