This is my first time posting to this site, but I am hoping to receive some advice or assistance from anyone who can tell me anything about Phyllodes Tumors and their experiences with them. I was first diagnosed with the tumor when I was 18, but didn't decide to do anything about it until just a couple of months ago (February 2013) at the age of 23. I had a wide local excision, which took a great deal of breast tissue out because the tumor was so large by that point. There was also a fibroidadenoma removed from the same breast--the right one. The reason I had the surgery was because my breast was hurting and the pain was getting to be too much. After the surgery I was in a little pain, but knew it was from the surgery....NOW the same pain is back. The pain I had before, alerting me their was a problem. I went in to just check on it, and it turns out the tumor has grown back. It hasn't even been 7 months. AND on top of all of that I need biopsies for 2 lumps on my left breast.
What bothers me, is how little my surgeon knows about this type of breast condition. Is it considered cancer? Is it not? I am now faced with 3 choices: (1) have another WLE (wide local exicision), (2) have a mastectomy and remove the problem all together, or (3)wait to do anything until the baby is born (as I am 26 weeks pregnant).
Also, the doctors and technicians think I am crazy but I feel my lymph nodes hurt all of the time when I have these tumors. They said the tumors are just reactive and are not affected, but no one looks. They see that the nodes are swollen but leave them alone. What should I do?
Any advice, tips, shared life experiences would be greatly appreciated. Thank you.