CSN Login
Members Online: 22

Side affects

jackflash22's picture
jackflash22
Posts: 241
Joined: Aug 2013

Side affects already 4th rad. My skin is sloughing off my tongue and inside cheeks, my neck looks like a chipmunk one side and my teeth feel coated. the mask had to be loosened a bit this morning to allow for the swelling. Tomorrow I have the op for PEG, and dental assessment, and rad. I can't eat or drink for 6 hours prior so my mouth will be so dry, what can I do to keep my mouth from drying out. The skin coming off cheek sides and tongue I hadn,t heard of in the forum has anyone had that.

robswife87's picture
robswife87
Posts: 178
Joined: Mar 2013

Rob had skin sloughing off the inside of cheeks and burn lesions on his tongue but it didn't start til the 2nd week. Did they give you Magic Mouthwash or Mugard. Try baking soda, salt and water rinses sll throughout the day.

Praying it does not get a whole lot worse.

Sandy

jackflash22's picture
jackflash22
Posts: 241
Joined: Aug 2013

I don't know if I can get them here in the UK. I will do the mouth wash is baking soda bicarbonate of soda?

robswife87's picture
robswife87
Posts: 178
Joined: Mar 2013

yes it is

fishmanpa's picture
fishmanpa
Posts: 1113
Joined: Jan 2013

JackF,

Sorry it's hitting you so fast. Yeah... ask your docs about Magic Mouthwash. It's essencially a lidocaine mixture you swish and spit. Some formulas you can swallow. I liked the swallow type personally. The baking soda and salt mixture really helped. I added 5g of glutamine as well. Swish/gargle that every 2-3 hours. The formula I used was 16oz water, 1tablesppon of baking soda, 1 tablespoon of kosher salt and 5g glutamine. 

Positive thoughts and prayers

"T"

robswife87's picture
robswife87
Posts: 178
Joined: Mar 2013

forgot about the glutamine. I couldn't find the powder locally but bought the tablets and crushed them up and put

Sandy

fishmanpa's picture
fishmanpa
Posts: 1113
Joined: Jan 2013

You can get the powdered glutamine through health/vitamin supplement sites. It's inexpensive. 

"T"

phrannie51's picture
phrannie51
Posts: 3685
Joined: Mar 2012

To keep your mouth dampened in the 6 hours before they put your PEG in, use ice chips, or a clean wet sponge (like pick a new one)....you aren't going to get enough water in your tum via ice chips or sponge to make any difference for a PEG.

Ask about Magic Mouthwash....they might call it something different in the UK, but I'm sure they have it.  It is a combo of lidocaine, pepto bismal, and nystatin....they whip it up in the drug store.  Also, ask the Rad doc about Mugard....Don't know if they have that in the Uk, but it's worth a try.  It has to be started early in radiation treatment or it can't keep up with the tissue sloughing off.  I kept a one liter bottle of the salt/soda mixture on my counter, and swished and spit many many times a day....it does help.  I used the L-glutamine powder mixed with water to get some type of liquid down my gullet when everything else brought misery to my mouth...but that was after rads were over, and the 5FU was terrorizing my lips.

Are you using anything for the outside skin for the rads?  Any lotions or potions to help your neck and face during radiation?

donfoo's picture
donfoo
Posts: 1206
Joined: Dec 2012

Jackie,

Sorry to hear about the early start, you usually get a 10 day reprieve. How about a Biotine dry mouth product to keep your mouth moist? Magic Mouthwash is a common non-medical phrase used to label a multi compound liquid. They are often different compounds but many have lidocaine (short term local anesthetic), Benydryl, nystatin, etc. Basically, it offers pain relief to the mouth/throat.

Since you are the front line now - remember - HYDRATION - NUTRUTION - PAIN MANAGEMENT. That is all there is to it and you will make it fine. 

don

denistd's picture
denistd
Posts: 492
Joined: Apr 2009

HI Jackie, I am a Brit living in the US and had 35 radio sessions and cisplatin chemo. Cancer patients in the UK have a much heralded system for nursing care, I wish we had something like that here. Are you under the watchful eye of the McMillan people, they are a true Godsend. My niece in Scotland just went through gruelling surgery radio and chemo for breast cancer, McMillan nurses came to her home every other day, they put handlebars in her toilet and did cleaning etc. They also took care of all her medication needs. I am sure you know this and yes you can get magic mouthwash there as well as other concoctions, just ask. Denis

TracyLynn72's picture
TracyLynn72
Posts: 680
Joined: May 2013

to hear they are hitting you already!  The side effects started on me after my SECOND day of rads, so I started early too.  They told me nothing to eat or drink before my PEG insertion, but when I got there, they gave me a bottle of water to sip on while I waited to get my IV.  Being hydrated helped them find a vein better.  They told me it was mainly food that needed to be avoided before the procedure. Best of luck to you and I hope things improve! 

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network