Sep 22, 2013 - 6:30 pm
I have been following this forum for almost two months now and have learned so much from everyone's experience. I'm a 26 year old that was diagnosed with mucoepidermoid carcinoma two months ago. The tumor was located on my hard palate and was surgically removed about a month ago. my staging was t4n0m0. About 75% of my palate was removed and the upper left jaw along with 6 teeth as well. The last two months have definitely been an adjustment, and I've only been able to get through it by the grace of God. I've been blessed with an amazing fiancé and family. My first day of radiation therapy will be tomorrow and I'm a little anxious. I've read a lot on this forum and I feel like I have a fairly decent grasp on what to expect. Thankfully, they only plan on radiating the upper portion of my mouth, where the surgical site is. I will have to use a bite block to keep my jaw open and will have to consciously keep my tongue as low as possible to avoid being radiated. Seems like a tiresome task to do for 20-30 min whole also trying to remain completely stationary. Does anybody have any pointers on helping time go by a little quicker? I've read about counting the cycles as the machine rotates and music. Thanks in advance!