Sep 21, 2013 - 9:32 am
HI. I am so thankful to have found this site!!! Julie, Carole and everyone's posts have been so helpful. I have finished 6 rounds of Taxol/Carbo/Avastin for a quite advanced cancer. I am a 15 year breast cancer survivor stage 3 treated on a clinical trial in 1998. This new cancer is not bc, but having a difficult time determining orgin or if PPC. Thankfully, the treatments are the same.
I was to have 8 rounds of T/C/A, but developed very numb feet and fell twice last week, so dropped Taxol, added Gemzar,now doing 2 weekly infusions, one week off. Don't know how long this protocol. I too will not be bound by prognosis, will make my own. I have always believed it to be a chronic disease. Not real happy to be off Taxol, but won't miss the bone pain. My numbers are still not normal, but had drastic drops each time. My CT two weeks aago was "dramatic" improvement and oncologist let slip "almost looks normal". the original was "widespread".
Has anyone had a drop in platelet counts low enuf to have to postpone Gemzar? Onc is on the alert for the count.
Thanks again for all the sharing!!! Keep on keeping on.....
Cyber hugs to all