Sep 19, 2013 - 8:52 am
Well my first chemo session went ok. It took three tries amongst three nurses to access my port, and two of the nurses were highly exeperienced. One is an old friend I have known for 13 years, and she felt terrible. Thank goodness for EMLA cream, all I felt was pressure, and a teensy bit of pain when there fingers touched the actual incision. I had a sinus headache from the cytoxan, but it didn't start till the bag was nearly empty, so the nurses said the next time they will slow it down.
The next day the Neulasta shot went well. I saw the social worker and got a prescription for a cranial prosthesis, otherwise known as a wig. My insurance will cover, but the nearest place that is in the plan that will accept the script is about 45 minutes away. Went shopping with my mother, because she wants me to wear brighter clothes, because it will not make me look so pale.
Felt very hopeful, and we went out to dinner, and ran into an old colleague. Updated him on my progress, laughed and had a great time joking about cutting my hair to look like PINK or Miley Cyrus.
Went home and that night freaked out over a tiny bump by the side of the port that my husband says looks like a tape burn/blister, because my skin is that sensitive. Took a shower, and while getting dressed afterwards, I swear I pulled a stitch. It hurt so bad I bent over double, let out a small scream, and had tears in my eyes. Pain went from my port across my breast and into my shoulder. Laid on the couch, took a norco, and called the advisory nurse. The norco put me out, and when she called back, she said if the pain was managed to notify the clinic this morning.
My shoulder and arm are still tender. It feels like it did the DAY OF the port surgery. Hubby blames it on my carrying and lifting too much at work, and dressing too quickly. He also says I need to quit doing housework.
I am trying hard to keep up the good spirits. But the shoulder pain just brought the seriousness of it all crashing down again. I am sick, and this isn't the first time. But it is the most serious. I have had bulging disks in my neck, I have had severe migraines that I have been hospitalized over multiple times, I had severe endometriosis that left me incompacitated. I beat all that, I can beat this. I was happier and healthier than I had been in a long time. I am going to get that back. I just hate feeling dependent again.