Silver linings

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cadharose
cadharose Member Posts: 52
edited September 2013 in Head and Neck Cancer #1

With all the complaining that we cancer patients and survivors do (and much of it perfectly understable), do we sometimes overlook the positive things that can come from it? I have struggled with my weight all of my life, up and down the scale like a yoyo. At this rate with my compromised saliva I believe I may never be overweight again. And that thought makes me happy. Who wouldn't want a permament fix to that problem? (Did You finally help me out with this once and for all, God?) I just don't care about food that much anymore because eating is more of a struggle and not as rewarding. It's kind of a shame because I used to love to cook and eat. I have a big cookbook collection ~ now what will I do with it? Pass it onto my children I suppose.

...here's hoping for more good things to come!

Comments

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
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    silver lining

    cadharose,

    Don’t sell your plates yet, at 3 months out, it may be too soon.  I did not even start to seriously eat normal for 7 months.  I agree, having cancer is a great weight loser, but the price I paid was a bit steep.

    I read where your taste buds returned 100% after 1 month, that is incredibly good news.  I wish that mine where half that good, but they are not, but they are still getting better.  I will admit that eating is more of a necessity now, takes lots of fluids and isn’t nearly as much fun as it used to be.  Then again I am going to play the hand I was dealt and learn to enjoy the new menu.

    I do enjoy a good steak and since it takes so long to eat it, I enjoy every chew. 

    See you,

    Matt

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    Silver Linings~

    Actually as Matt has said, more than likely you're going to get the majority if not all of your saliva, and taste back. In the big picture at a few months, you're far from seeing the final results on both.

    As for silver linings, and seeing the positive of cancer....

    In many ways, I'm a better person from having cancer than before.

    Many of us lose sight of who and what is truely important in our lives. Sometimes it takes an awakening such as cancer and the possibility of dying, and then surviving to make you realize.

     

    What was once thought to be important, now not as much. What once was neglected, thought little about, or just plain taken for granted..., now is huge and most important.

    Best,

    John

  • jim and i
    jim and i Member Posts: 1,788 Member
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    not so silver

    Sorry to be the bearer of bad news but, the weight comes back. Jim is two years out from treatment and still on a PEG. He has gained back to an acceptable weight but all around his middle. He cannot exercise because he hasn't the energy to do so. Not saying you will be tired all the time but you will probably gain weight again Undecided

  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
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    Everyone's Different

    The mantra I heard here from the very beginning is "Everyone is Different". That statement has, above all else, been the truest of all.

    Cancer in any form is a nasty disease. How we are affected as patients, survivors, caregivers and family members varies as much as the weather does day to day, week to week and month to month.

    Are there positives or "silver linings" to this? It depends on how you look at it. In my opinion, when you face death on an intimate level as many of us have, we are bound to have some profound changes in our lives. How we recover and adapt to life after cancer affects us as well. It depends on our attitude. After all, "Life is 10% what happens to us and 90% how we handle it" *Charles Swindoll*

    Personally, having faced my demise several times in the last 6 years, I have a greater appreciation for the simple things in life. Material "things" don't mean much and haven't for some time. I avoid 'Drama" and those that thrive on it like the plague. From a physical standpoint, like you Cadharose, my weight loss has had some benefits. Having a propencity for high cholesterol and triglycerides, my weight loss has brought those levels to normal for the first time since... well... ever! Even at the peak of my physical fitness, there were never this good. However, the sacrifices were many and while it bodes well for my cardio vascular health, I can think of much better ways to get there than cancer I assure you! ;) 

    At three months out of treatment (I'm going on 5 months), you're still in the infantile stages of recovery. The truth is, it will take a year or more before we really know what our new normal, or "abi-normal" is. I'm very encouraged so far as the last month or so has shown some drastic improvements in all aspects. I still struggle with certain things but it's to be expected. While frustrating at times, I take solace in knowing things will improve and the very fact that I'm alive is a blessing words cannot describe.

    One only need look at the posts by the newcomers and those that have been fighting recurrences and complications to see how fortunate some of us are (raising my hand).  

    Continue to be pro-active in your recovery. Swallowing exercises, jaw exercises, and general exercise will only aid and speed up the recovery process. I myself am guilty of not being as active as I should be but as I recover and my energy level improves, I'm finding my new normal and the drive and incentive to return to it.

    Positive thoughts and prayers

    "T"

  • phrannie51
    phrannie51 Member Posts: 4,716
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    Don't throw your old clothes out yet....

    give it a year....I haven't gained my weight back, and I'm a year out....so maybe, just maybe the new svelte you is here to stay.  Food just doesn't have the same pull as it used to for me, that's for sure.  It takes effort with the lack of spit, and since my new buds give up the ghost after about half way through, there's no reason to get a second helping.  I don't feel like cooking either...I do it, but with no enthusiasm.  The other part of this that is a plus....because we go for so long starting over with food, we develop new eating habits....and we didn't even have to work at the change.  Veggies are one thing that really do have a good taste...I liked them before, now I love them!!  Chocolate is out....green beans are in Laughing....

    p

     

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    fishmanpa said:

    Everyone's Different

    The mantra I heard here from the very beginning is "Everyone is Different". That statement has, above all else, been the truest of all.

    Cancer in any form is a nasty disease. How we are affected as patients, survivors, caregivers and family members varies as much as the weather does day to day, week to week and month to month.

    Are there positives or "silver linings" to this? It depends on how you look at it. In my opinion, when you face death on an intimate level as many of us have, we are bound to have some profound changes in our lives. How we recover and adapt to life after cancer affects us as well. It depends on our attitude. After all, "Life is 10% what happens to us and 90% how we handle it" *Charles Swindoll*

    Personally, having faced my demise several times in the last 6 years, I have a greater appreciation for the simple things in life. Material "things" don't mean much and haven't for some time. I avoid 'Drama" and those that thrive on it like the plague. From a physical standpoint, like you Cadharose, my weight loss has had some benefits. Having a propencity for high cholesterol and triglycerides, my weight loss has brought those levels to normal for the first time since... well... ever! Even at the peak of my physical fitness, there were never this good. However, the sacrifices were many and while it bodes well for my cardio vascular health, I can think of much better ways to get there than cancer I assure you! ;) 

    At three months out of treatment (I'm going on 5 months), you're still in the infantile stages of recovery. The truth is, it will take a year or more before we really know what our new normal, or "abi-normal" is. I'm very encouraged so far as the last month or so has shown some drastic improvements in all aspects. I still struggle with certain things but it's to be expected. While frustrating at times, I take solace in knowing things will improve and the very fact that I'm alive is a blessing words cannot describe.

    One only need look at the posts by the newcomers and those that have been fighting recurrences and complications to see how fortunate some of us are (raising my hand).  

    Continue to be pro-active in your recovery. Swallowing exercises, jaw exercises, and general exercise will only aid and speed up the recovery process. I myself am guilty of not being as active as I should be but as I recover and my energy level improves, I'm finding my new normal and the drive and incentive to return to it.

    Positive thoughts and prayers

    "T"

    Fishing Stats...

    10% of the Fishermen, catch 90% of the Fish...

  • hwt
    hwt Member Posts: 2,328 Member
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    Don't throw your old clothes out yet....

    give it a year....I haven't gained my weight back, and I'm a year out....so maybe, just maybe the new svelte you is here to stay.  Food just doesn't have the same pull as it used to for me, that's for sure.  It takes effort with the lack of spit, and since my new buds give up the ghost after about half way through, there's no reason to get a second helping.  I don't feel like cooking either...I do it, but with no enthusiasm.  The other part of this that is a plus....because we go for so long starting over with food, we develop new eating habits....and we didn't even have to work at the change.  Veggies are one thing that really do have a good taste...I liked them before, now I love them!!  Chocolate is out....green beans are in Laughing....

    p

     

    This topic

    Reminds me of a magnet on my fridge "I wish I was as thin as I was when I thought I was fat" Be careful what you wish for!

  • Hondo
    Hondo Member Posts: 6,636 Member
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    Food

    I have been trying to get back to 180lbs for the last 5 years and don’t look like it will happen anytime soon. Before C I was 230lbs after C I went down to 140lbs, I am now just almost holding at 160lbs and can blow away in a strong win. You are right it did what no other weight loss program could every do but man it was expensive.

    Actually I see a lot of other blessings from having C, one is all the people I got to know here on CSN and how we all have become a family caring and supporting each other. I have also been blessed by getting to know my Lord and savior better and having to learn from Him everyday life anew. I have met many of others who were in fear when they heard the word cancer and have been able to help them pass the fear.

    I have lost my voice and ability to swallow but have found even in this a blessing. I can’t preach anymore but can write my sermons and post them on the internet, what satan has done to be a curse God had turned into a blessing again.    

    You are so right sometime we all need to stop and look because behind every problem there is also a Silver Lining  

     

    God Bless

    Hondo

  • TracyLynn72
    TracyLynn72 Member Posts: 839
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    My hubby says...

    this was a $225k diet plan!!  haha  I have heard that the weight could come back, but with all of my dental issues now, I doubt mine will go back to what it was.  I've maintained the same weight now for 4 months (half with the PEG and half without).  I can't chew all of the things I once could and I still am NOT liking sweets.  I don't try them often because I'm afraid to like them again! haha  

     

    I can honestly say that cancer sucked, the surgeries and treatments were NO fun, but we have been blessed in many, many ways through this whole journey.  There definitely is a silver lining! 

  • yensid683
    yensid683 Member Posts: 349
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    Lemonade from lemons...

    I suppose, there have been unintended positives from the battle with C, and some that aren't as nice.  I too lost the weight that I couldn't seem to lose, down 40 lbs.  I saw a long time business acquaintance in January who remarked that I looked so good and what was my secret diet.  I replied "hospital food and chemo".  Needless to say she was quite taken aback and I decided that it was not the right thing to say, but I did lose the weight, high cost, not just in dollars either.  I used to take a blood pressure medication, with the weight loss I no longer need it. 

    On the down side, I seem to be so much more sensitive to the cold.  Even with the very hot summer weather, I had no problems with an overly warm bedroom, there were even some nights that I needed a blanket, even though it was 75 in my room. 

    Still, I'm doing okay, I can eat just about anything, I still need to keep a water bottle handy, and have continuing soreness in my neck from the two dissections, but life goes on (oh bladee oh bladaa...)

    Scan coming up this Monday. On the one hand I'm ever hopeful that it will come back clear, on the other hand I am greatly afraid that they might find something new. 

    Peter

  • denistd
    denistd Member Posts: 597
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    HMMM gaining weight

    Don't for one minute think the weight can't come back. I was 175 before treatment, down to 145 after treatment, weight came back pretty well, was 165 a year after treatment, slowly got back to 175. In May of this year I was up to 180, I wondered why. Then, it seems overnight I went to 189, I was also dreadfully constipated, went to the doctor who said let's check your thyroid. That was it hypothyroidism, radiation finally did it's work on the thyroid. haver been taking synthroid, we still don't have the right dose but weight is now 185, all gut. Go back in two weeks and will probably have my dose adjusted again. So don't think it can;t happen, if you had radiation to the neck, there is a good chance the throid will slowly conk out.

  • donfoo
    donfoo Member Posts: 1,771 Member
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    yensid683 said:

    Lemonade from lemons...

    I suppose, there have been unintended positives from the battle with C, and some that aren't as nice.  I too lost the weight that I couldn't seem to lose, down 40 lbs.  I saw a long time business acquaintance in January who remarked that I looked so good and what was my secret diet.  I replied "hospital food and chemo".  Needless to say she was quite taken aback and I decided that it was not the right thing to say, but I did lose the weight, high cost, not just in dollars either.  I used to take a blood pressure medication, with the weight loss I no longer need it. 

    On the down side, I seem to be so much more sensitive to the cold.  Even with the very hot summer weather, I had no problems with an overly warm bedroom, there were even some nights that I needed a blanket, even though it was 75 in my room. 

    Still, I'm doing okay, I can eat just about anything, I still need to keep a water bottle handy, and have continuing soreness in my neck from the two dissections, but life goes on (oh bladee oh bladaa...)

    Scan coming up this Monday. On the one hand I'm ever hopeful that it will come back clear, on the other hand I am greatly afraid that they might find something new. 

    Peter

    feeling cold = pretty common

    That feeling cold all the time is pretty common. I sure felt that way for some time but still not 100% normal, as it is still summer in Calif and I still wear long jean pants all the time. I can finally feel comfortable in short sleeve shirts. Early summer I would still don a winter jacket due to freezing all the time. It passes.

    Try to manage the anxiety and you'll be good for Monday.

  • phrannie51
    phrannie51 Member Posts: 4,716
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    donfoo said:

    feeling cold = pretty common

    That feeling cold all the time is pretty common. I sure felt that way for some time but still not 100% normal, as it is still summer in Calif and I still wear long jean pants all the time. I can finally feel comfortable in short sleeve shirts. Early summer I would still don a winter jacket due to freezing all the time. It passes.

    Try to manage the anxiety and you'll be good for Monday.

    Peter....will tuck you into my

    pocket for the upcoming scan.....I keep saying this, I know....but this cancer is a nerve wracking business, and scan time is the absolute worst.  I have a feeling tho, that it's all going to be fine.

    As for the cold....ME TOO!!  It was July before I started wearing short sleeves outside....and I haven't donned a pair of shorts for two summers....LOL.  Tonight hubby and I were out brushing horses and found a yellow jacketnest in the ground.  I had a long sleeved t-shirt on, plus a lined sweatshirt....and it was all I could do to stay put while hubby went to the garage for a shovel and some wasp killer waiting for him to get back so I could show him where to spray.  I was chilled to the bone.  I hope Don's right and this passes within the near future....I almost froze to death last winter....inside and out.

    p

  • peggylulu
    peggylulu Member Posts: 375
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    OMGoodness it

    sounds like you were telling the story of my life ! I have lost almost

     90 pounds and I feel exactly the same way . I want my taste and salava back but I sure dont want those 90 pounds back ! I do feel so much better !! I too have been able to get off my Blood Pressure medicine and Don I live in South Texas and I have not been hot all Summer and I am loving that ! I have slept with a blanket all Summer. Lol It has been 11 months and I did give my old clothes away so I better not gain it back ! I've always heard if you keep it off for a year you won't gain it back . Sure hope that is true !