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Just thought I'd let you know

childofthestars's picture
childofthestars
Posts: 246
Joined: Jan 2011

Hi guys just thought I'd give you all an update on my 'journey' As some of you may be aware I was dx with breast ca in 2000 had lumpectomy and chemoradiotherapy and have been having regular 6 monthly checks ever since all been ok up till now - just been dx with DCIS (ducal carcinoma in situ) thankfully this is PRE cancer so all I need is mastectomy (bilateral - my choice)   But most importantly for me NO chemo. 

From an ovca perspective still NED (dx stage 2C June 2010)

cyber hugs to alllllllll 

Michelle xxx 

scatsm's picture
scatsm
Posts: 235
Joined: Apr 2013

there is a cohort of women on this board who've had both breast and ovarian cancers...are you BRCA positive? I found out I was BRCA2 after the ov dx.  I had ov ca in 2011, and am ned from that so far, and breast ca in 2012, needing only a double mastectomy, Herceptin for a year and Arimidex for 5 years. All in all, the breast cancer diagnosis was much less devastating than the ovarian...and the surgery is much easier, and the treatment for it as well.. Here's hoping that your journey is an easier one too. Keep us in the loop!

Susan

Alexandra's picture
Alexandra
Posts: 1198
Joined: Jul 2012

"Double trouble", "Double whammy", "Teal'n'Pink", "BRCA-licious"

My BRCA1 mutation is called 185delAG (Ashkenazi). What are yours?

Michelle, I'm very grateful for your guidance. Good luck!

mopar
Posts: 1948
Joined: May 2003

So sorry you have to go through this.  But thankfully the pre-cancer diagnosis.   Prayer for a smooth surgery, and speedy healing.

Monika

childofthestars's picture
childofthestars
Posts: 246
Joined: Jan 2011

Hey ladies 

thanks for your lovely messages. 

Yes I have the BRCA1 gene same as yours Alexandra - I think we're sisters from another mother LOL!!!!!! 

Well I'm meeting with breast surgeon who will remove breast tissue & plastic surgeon who will reconstruct tomorrow - will let u know how it goes. Surgery probably mid October (that is if I can't get it done next week!) I'm going away for my sons 21st with family & friends on 18 Oct & don't want to ruin it!!!!!! 

Sending hugs to all you lovely ladies. 

Michelle xxxxx 

Hearty Pioneer's picture
Hearty Pioneer
Posts: 126
Joined: Apr 2013

I had a double mastectomy with DIEP reconstruction June 25, 2013. Blessings to you on your journey.

childofthestars's picture
childofthestars
Posts: 246
Joined: Jan 2011

Thank you Hearty Pioneer 

I saw my breast doc & plastics doc today - discussed DIEP & other options  what was the recovery like following your surgery & have u now got a nice flat tummy?  Did u also have a vertical scar on your stomach from ovca surgery - I am going to have a CT on my stomach area where they would take the skin from for reconstruction just to make sure it's viable - did u have this too?? 

Michelle x 

Hearty Pioneer's picture
Hearty Pioneer
Posts: 126
Joined: Apr 2013

Dear Michelle,

In 1993 and 1998 I had c-sections. In 2001 I had 2 lumps removed from my rt breast. They were cancerous, but encapsulated and no chemo required. In 2012 I had my debulking surgery for ovarian cancer. So my body has several scars. Since I had a serious belly infection after the IP chemo, I was not a candidate for implants.  So I chose DIEP over going flat. I had the CT scan to make sure all was well to transfer the belly fat to the breast, and my CT scan went well. I had an 11 hour surgery on June 25. I have a scar on my belly that goes past one hip to the other hip and then the key hole scars on my breasts.  I did have some necrotizing skin on my belly and lt breast from the surgery.  Those areas have healed well and look red like burns and continue to heal. I am set for my second surgery Nov. 7. 

Rosamond M
Posts: 87
Joined: Apr 2013

Michelle you've made the right decision

To treat this problem with optimism.

With best wishes and support we all unite

To reassure you that you'll be alright!

Rose .

childofthestars's picture
childofthestars
Posts: 246
Joined: Jan 2011

Thanks Hearty Pioneer & Rose 

i had a full on day yesterday but the best thing about it was I got the results of my CA125 (which they made me take) and it was 3 - yaaaaaaaaay :))))). 

Enjoy the rest of the weekend. 

Mxxxxxxx 

Hearty Pioneer's picture
Hearty Pioneer
Posts: 126
Joined: Apr 2013

Yeah!! Such good news!!

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