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That Old Rituxan Feeling

Rocquie's picture
Rocquie
Posts: 488
Joined: Mar 2013

I had a Rituxan infusion Friday. I was at the clinic for about 5 hours. We left there and went out to eat. I was freezing and didn't have much appetite but otherwise felt OK. Saturday morning, I still felt fine. But Saturday afternoon, just about exactly 24 hours after my infusion, I started getting "that feeling". Yes, that one--vague, flu-like symptoms, achy, chills, skin prickly and sensitive, lethargy. I just took it easy. Sunday, the feeling remained. Yesterday, I woke up grumpy and grouchy. Ill as a hornet! And I stayed that way most of the day. Good thing my husband was working. Smile 

Later in the day, just about 72 hours after my infusion, I had a feeling, like a wave of energy washing over me. And that was it; I felt just fine. This morning, I woke up feeling back to my pre-treatment self.

Previously, I had so many other things going on, it was really hard to know just what was from the Rituxan. Now I know. And 72 hours of not feeling so great is certainly worth the price of seeing those words, "Clinical Complete Remission" in my records.

Health, healing, and happiness to all,

Rocquie

 

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Yes those are great words to hear. Just think 40 years ago those words did not hardly exist and now hear them more and more. John

Rocquie's picture
Rocquie
Posts: 488
Joined: Mar 2013

John, a while back, while I was getting a blood transfusion as an outpatient at the hospital, I was chatting with my nurse. She told me she has worked on the same floor of the hospital for over 30 years. She told me that when she first started there was no oncology unit. She was remembering when doctors would mix chemo down the hall in the little room they now use as a kitchenette for coffee and patient snacks. No one had a port--they gave caustic chemos right into the vein.  There was no Rituxan. (The FDA only approved it 16 years ago). 

I asked her if anyone ever lived and she said, "No, not really".

We are indeed lucky to live in these times!

Your friend in Remission,

Rocquie

 

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Rocquie,

  Yes we are fortunate that way. There seems to always be an option with Lymphoma. The old motto is "If at first you don't succeed try, try again". That still holds true for everything...except for Skydiving !!! John

NANCYL1
Posts: 238
Joined: Jun 2012

Hello Rocquie:

Congratulations on the good news!

I have been on just Rituxan since May of last year.  Infusions every 6 months.   If all goes well, the last infusions will be in November of this year, and then checkups every six months.

Nancy

jimwins's picture
jimwins
Posts: 2025
Joined: Aug 2011

That's wonderful, Roquie.  So happy to hear it!

Hugs - Jim

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