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Lung mets update and interesting new trial on the horizon.

Fucc
Posts: 92
Joined: Sep 2012

I met with a thoracic surgeon today. My case went to the tumor board this morning. It was decided that I have too many (5) lung mets and they are all too small (most only a few millimetres). The decision is that my best bet is chemo, folfiri and avastin then see how things go. Surgery or sbrt may be an option later. However, something interesting is that this particular surgeon is starting a clinical trial for lung mets where chemo is delivered just to the lungs, similar to the HAI pump for the liver. He said I would be the ideal candidate for this trial, but it doesn't until next fall. He also said there is done other interesting stuff happening, but didn't comment any further. 

So now my question is, when do I start chem? I was given the option if starting now or waiting for another scan in three months and reassessing then. What gave others done? The doctors don't have much to say either way. These lung things were stable for a year. Now in the past four months have showed growth. I'm a bit lost.

Hooley's picture
Hooley
Posts: 156
Joined: Aug 2012

I have 4 lung mets too.  Exciting to know of new stuff happening.   I have been on folfiri for 20 treatments now.  Its ok but I too like to see a light at the end of the tunnel.   My largest was 69mm which has shrunk to 45mm.   Finally found a surgeon who says he can operate   If they start to grow I think an op will be in order.  Only side effect, for me, is acne rash.   Got real bad these last two weeks.   If theyre starting to grumble phaps consider getting onto it.   Ask him about Xeloda. tablets   It kept mine stable for 6 months.    Where abouts is your surgeon

Take care, Sue (all the way from Aus)

Fucc
Posts: 92
Joined: Sep 2012

Hi Hooley. Why put off surgery? I would have gone with surgery or cyberknife if my doctor recommended it yesterday. It's the best shot if long term remission and will get you off chemo. It still is my hope. I will ask about xeloda. I think we need to first see what these things are going to do. They still don't even really know what they are. I am realistic in that they probably are mets. I am located in Toronto. I am being treated t the Princess Margaret Cancer Center. 

 

 

Hooley's picture
Hooley
Posts: 156
Joined: Aug 2012

Cyber knife looks great.  have read up lots don't think we habeam here,in Australia.....bugger.  Not sure avast Vats surgery is?    Keep positive always.  Take care 

Roddy2
Posts: 21
Joined: Dec 2012

What state in Aus are you being treated, I am in in Brisbane. I was diagnosed with Stage 4 MCRC in June last year, with Mets in Liver and Lungs. Up to treatment 30 of Folfox (minus the Oxally now thankfully) and also on a trial called Congo. Have raised the surgery option with Oncologist, but get feedback that nothing is operable at this point of time.  Tumours reduced in size by 33% over the first 12 months but have now become stable. Consistent with stable disease as the gurus put it. Trial runs for another 10 months, so may be avoiding surgery to let trial run it's course.

cheers

Roddy

 

Hooley's picture
Hooley
Posts: 156
Joined: Aug 2012

I'm in SA.  (Hahndorf in the Adelaide hills) 

am very interested to see how trial goes.    Kep me in touch.  A lung specialist initlally told me inoperable ( yet back then were a third they are now !).    Found a Lung surgeon who can operate.     

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