CSN Login
Members Online: 8

Herceptin OR herceptin and perjeta? Update

CypressCynthia's picture
CypressCynthia
Posts: 4017
Joined: Oct 2009

My favorite, most trusted onc of 26 years mentioned that he wanted me to have herceptin and perjeta indefinitely after stopping taxotere. 

My new, local onc mentioned continuing only herceptin.  I told him other onc wanted both and he didn't see why.

Well I hate getting caught in these kinds of situations and felt really stuck in the middle.  Immediately tried to call my trusted onc, only to find out he was on extended medical leave (turns out he was in a bad car accident).  Finally reached him this past Tuesday and asked him how strongly he felt about me having herceptin alone vs herceptin + perjeta.  Of course, he said, "Very strongly."  I asked him to please call newer onc as I could not get in the middle and he agreed.  Only problem, other onc was out of town until Wednesday and chemo was Thursday. 

I stayed up all night Wednesday being a worry wart about this.  I called early Thursday morning and the local onc's nurse told me both drugs were ordered and not to worry.

As much as I am relieved to be on the protocol my trusted onc wants, perjeta is the drug that I always have a reaction to.  I always, alway get flushed and nauseated immediately.  My onc nurses have been great about working with me and trying different meds, slowing infusion, etc, but it always happens: immediate flushing and nausea.  This time Danny said I looked grey and had bad chills (no fever).  Had to be covered with my fleece and 4 prewarmed blankets and was still cold.  More ativan and finally slept it off.

Today, it is all gone--just a little nausea being handled with zofran

Too bad I couldn't skip the perjeta...Lol.  Well, if the perjeta beats back the beast, we know it is all worth it! 

smalldoggroomer's picture
smalldoggroomer
Posts: 1181
Joined: May 2010

I am also on Herceptin and perjeta along with xeloda ( pill chemo ) I don't react like you do though. I'm sorry you are having a hard time with it. My Dr told me that the perjeta makes the others work better. Gets them deeper into cancer tumors to kill them. I'm not real sure why I am on both when I am in remission but I will do what ever it takes to fight this beast.

You have been a real insperation to me. You are one strongh lady. Thank you

Take care darlin

Kay,

New Flower
Posts: 4142
Joined: Aug 2009

Sending positive thoughs and hope your doctors will find concensus. It is always an educated guess 

Keep fighting

Olga

SIROD's picture
SIROD
Posts: 2204
Joined: Jun 2010

Kay,

I am so happy that you are in remission.

Best,

Doris

SIROD's picture
SIROD
Posts: 2204
Joined: Jun 2010

It is to bad Eileen that they couldn't knock you out for the drug and when you wake up, your better.  It is about keeping the horrible cancer back and since it seems to be working, I guess the warm blankets, fleece should be ready.

I wish it didn't give you the reaction your getting.

Thinking of you and sending positive thoughts that your body will adapt to perjeta in time and it will be better.

Best,

Doris

 

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network