Sep 05, 2013 - 5:22 pm
After Mike's recent post about ORN and after reading many horror stories about jawbone and teeth failing after radiation, it clicked that what is going on in my mouth could be Osteoradionecrosis. I'm certainly not one to get wound up about various symptoms but after fighting a lot of pain in the gum last week, the imminent 3 day holiday, and my first post tx PET/CT last week, a lot was up in the air but I decided I better get in to the dentist to have a look and get some meds for the long holiday weekend.
First the dentist, then the oral surgeon, looked and poked and said it was not that unusual for some bone/tooth material to come through the jaw tissue in an area where a tooth was extracted. note: tooth was extracted in dec 2012, prior to treaments. They gave me some meds and told me to come back into the office in two weeks.
I saw my ENT surgeon today who took a look and responded less casually about the exposed bone and said I had better get it looked at. He wants to get the chart and images from the oral surgeon and follow up directly. I assured him I would advise him after the followup visit next week.
Reverting to Mr Google from time to time, I found a few images of ORN that had me going, "that sure looks a lot like what is going on". Not good. Searching this forum top to bottom only resulted in a page of hits, so it is not that common a topic, even though it seems discussed a lot more.
Here is a link to what OCF writes about ORN.
Thought I would post as other than Mike's recent post, there are few actual member experiences posted on the topic. Hopefully, what I have is not Osteoradionecrosis but between the image and the surgeon's reaction today it surely has me crossing into the "concerned" zone.
Hopefully it is no big deal but figured it would be of interest to the post rad crowd.
Here is what it looks like so far. Does not seem to be changing much the past week or two. The way the oral surgeon described it was it would heal up pretty quick so seeing no improvement does not feel very comforting either. At least the tissue seems healthy.