Aug 28, 2013 - 1:11 pm
Hi All, haven't posted for a while but I occasionally lurk to see what's happening. Lots of new people but I see some of the real oldies like John and Pat are still around helping people. I am close to my 2 year mark and everything is looking fine. I have all my saliva and most of my taste so life is good. I am now at the point where additional CT/PET scans are becoming an arbitrary procedure. My RO is leaving it up to me if want one at the 2 year mark (I had one 6 months ago). He feels it is not necessary but if I want it he will order it. My ENT thinks one per year is enough. Part of me says get one more at the 2 year mark. I am being told that at 2 years and NED the odds of having a recurrence or matastasis drops to about 10%. Who knows about a new primary, my ENT seems to think that is more likely than anything else since whatever caused the disease in the first place is still able to do it again. If if takes another 60 years I guess I don't care. Any thoughts on the scan frequency?