Aug 13, 2013 - 11:59 am
Hi Ladies, I really need some advice/guidance/suggestions...
I was diagnosed w/micropapillary serous carcinoma 3C in 9/11, finished chemo just this past February 2013 (I was part of a clinical trial of Avastin, that's the reason it went on for so long) My CA 125 did get down to 9 but started creeping up since past December, but my last jump was a big one, more than double and it's now higher than it was before my surgery so my oncologist said we'd likely start chemo again in the fall. (I had reached what they considered remission) So I went about my life because this summer has been crazy busy. I was upnorth with my daughter for her softball tournament and developed severe, and I mean 8-9 pain level, abdominal pain in the upper left side, at one point I was very close to passing out. Another parent took me to the ER and I had a multitude of tests...here's the crazy part...I told them I had recently been told I was in recurrence for OC - this was about a month after my last CA125. One of the tests was a CT and they did not see ANY cancer!! (that's the hopeful part) The only test that was abnormal was the blood test for my pancreas and since they found nothing else they decided it must be pancreatitis. This last a few weeks and I was better, not pain free, but better for about 3 weeks. Then BAM same pain, right side, brought me to tears, now they decide it's probably gallbladder, but again all tests have been normal - Im having a HIDASCAN on Friday though, but I'm thinking it will be normal as well. So I'm very frustrated but taking the fact that they saw nothing on the CT as a good thing.
Have any of you experienced this abdominal pain that they can't explain? I've heard adhesions/scar tissue may cause pain like this. Can that cause your CA125 to rise?
I'd very much welcome and thoughts and or suggestions.
Thanks tons for listening.